Median Arcuate Ligament Syndrome (MALS)

My tilt test was normal but I had sympathetic and parasympathetic tests that were abnormal in one and then it flopped to abnormal in the other but my symptoms are the same either way so idk how accurate it is. Idk if it’s from mals squeezing the celiac plexus or if there’s something wrong w my nervous system. I’ve had so many gi tests and nerve tests. The only test I didn’t have is a small bowel manamotry

I have mine on and off through out the day. Looking for dysautonomia specialist at vcu. My dr is referring me. My neurologist said it’s not her specialty. And I need to do the testing to see which one I have. Evidently there are many different types. Were you tested?

I have fatigue and get dizzy when I stand up and after I eat.

I did not have surgery yet. The celiac plexus block didn’t help. So my dr uses that as a gauge for open surgery. I go back again in six months to see if the block works. I think most of my chest pain is from dysautonomia. Are you fatigued all the time? Do you get dizzy spells?

I do have dysautonomia. Did you get mals surgery ? I don’t remember if you told me.

Yes that’s typical for Mals. However you can have pain in chest as well. Have you been diagnosed with dysautonomia? My surgeon said the majority of her Mals patients have this as well. It affects your bp heart rate etc.

Does anyone have experience with Dr. Skelly ?

I had an esophagus test that shows the motility is ineffective but I don’t have chest pain or pain with swallowing. Sometimes I cough on food though. It’s easier for me swallow solid than liquids.
The pain is upper mid abdomen which I think is mals but not sure. All other gi tests normal.

Have you gotten testing done from a gi doctor? I’ve had many. The very last one was a monometry test. They found that the muscles in my esophagus are ineffective. Not working properly. Lots of pain and on soft diet. Have had several trials of meds to relax the muscles. None successful yet. I also have dysautonomia with the Mals. Gotta take life one hour at a time. Advocate for myself and be grateful for the good days. I would try my gi doctor. Good luck!hope you feel better real soon and get some answers.

Yes it helped for a day and then didn’t. My lower pains I used to get from ibs. Now after I eat I get gnawing and bad pain in my upper mid abdomen. The only positive test is mals.