Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

Interested in more discussions like this? Go to the Digestive Health Support Group.

@astaingegerdm

My vascular surgeon said same plus- if there was a problem pacing stent they would have to go to open correction with bypass.
To prevent blood clots I took an anticoagulant for a certain amount of time- don’t remember how long.
Another point- once you have bypass, there may be a need for repeat surgery. The less surgery you have, the less risk for scarring, adhesions and hemorrhage. This is what I learned.
Who knows- I may still need a bypass if my stent crumples up, for now I’m good.
Nothing is easy! 🙂

Jump to this post

Sounds good. I will find out next week in what the plan will be. More than likely a stent would be in order. Appreciate the insight.

REPLY

My vascular surgeon said same plus- if there was a problem pacing stent they would have to go to open correction with bypass.
To prevent blood clots I took an anticoagulant for a certain amount of time- don’t remember how long.
Another point- once you have bypass, there may be a need for repeat surgery. The less surgery you have, the less risk for scarring, adhesions and hemorrhage. This is what I learned.
Who knows- I may still need a bypass if my stent crumples up, for now I’m good.
Nothing is easy! 🙂

REPLY
@astaingegerdm

That’s a tough question- I personally think a stent is a good choice unless your doctor has reservations. A stent is not so invasive.

Jump to this post

I believe my Vascular Doc said the stent would be less invasive. And to keep the option for down the road for the bypass. However, which one has the better upside in being permanent for the long haul. I heard stents can cause blood clots to even blockages over time. Having my age and somewhat of okay health a bypass would be something I think my body could handle if it remedy’s my issue. However, if the stent is just as good and less invasive then I would say I’m good with that.
But I will definitely ask as many questions as possible before proceeding. Thanks again, and I will post what my doctor thinks that she wants to do.

REPLY

That’s a tough question- I personally think a stent is a good choice unless your doctor has reservations. A stent is not so invasive.

REPLY
@astaingegerdm

Thanks for the entire report! First- I don’t know your age, but you don’t have any atherosclerosis !
You seem to have what I had- artery still staying in compressed position. Your iliac arteries are normal.
Your doctor will have to decide what to recommend in this situation. I hope a stent would help open up the artery more. Keep your fingers crossed!
Would like to hear what your vascular surgeon says.

Jump to this post

Lol sorry just copied and pasted lol. I’m almost 45 yrs of age. Yeah waiting to see what the doc wants me to do. I will update when I hear back. Stent was one thing my doctor said or a bypass. So not sure which one would be best for the long term. Thoughts? Thanks

REPLY

Thanks for the entire report! First- I don’t know your age, but you don’t have any atherosclerosis !
You seem to have what I had- artery still staying in compressed position. Your iliac arteries are normal.
Your doctor will have to decide what to recommend in this situation. I hope a stent would help open up the artery more. Keep your fingers crossed!
Would like to hear what your vascular surgeon says.

REPLY
@astaingegerdm

Wishing you well! I would really like to hear from you after testing and discussion.

Jump to this post

This is my results from my current CT scan.

Study Result
Impression
Status post surgical decompression of median arcuate ligament syndrome with persistent, mild narrowing of the proximal celiac artery and mild poststenotic dilation. The abdominal aorta and its major branch vessels are otherwise unremarkable without significant atherosclerotic disease or stenosis.
CTA of the abdomen and pelvis

CLINICAL HISTORY: Celiac artery stenosis; median arcuate ligament syndrome. Status post surgical decompression of median arcuate ligament syndrome in 2019

TECHNIQUE: Multiple contiguous axial images were obtained through the abdomen and pelvis after the IV administration of Omnipaque 350 contrast material. Image postprocessing coronal, sagittal, and three-dimensional reconstructions were obtained from the source axial data.

COMPARISON: No previous

FINDINGS:

Lower thorax: The visualized portions of the lower thorax are grossly unremarkable.

Liver and biliary system: A portion of the hepatic dome is excluded from the field-of-view. The visualized portions of the liver are unremarkable. There is no biliary ductal dilation.

Spleen: Unremarkable

Adrenal glands and kidneys: Unremarkable

Pancreas and retroperitoneum: Pancreas unremarkable. No retroperitoneal lymphadenopathy.

Abdominal aorta and major vessels: The abdominal aorta and iliac arteries are normal in caliber containing no significant atherosclerotic plaque. The origin of the celiac artery is patent. There is narrowing of the proximal celiac artery measuring up to 0.5 cm in diameter. Mild poststenotic dilation is present within the more distal portions of the celiac artery measuring up to 1 cm in diameter. The superior mesenteric and single bilateral renal arteries are widely patent. Flow is preserved within the inferior mesenteric artery.

Bowel, mesentery, and peritoneal space: Mild scarring and a focus of dystrophic calcification are noted within the omental fat, as demonstrated in images 2/15 through 17, likely postoperative in nature related to the patient's prior median arcuate ligament decompression. The bowel loops are nondistended. The appendix is unremarkable. There is no ascites.

Pelvis: Unremarkable

Osseous structures and body wall: No destructive osseous lesion.

Not sure what this all means. Waiting for my Vascular Surgeon to talk with me about the findings.

REPLY
@astaingegerdm

Wishing you well! I would really like to hear from you after testing and discussion.

Jump to this post

I will definitely keep everyone updated. And thanks to everyone’s help.

REPLY
@jayson

Thanks so much. I feel the stent will help, however I’m just worried with the scar tissue being the possible issue. I’m going in on the 21 of April for a CT scan to see how everything is working. Also, they’re going to look at my iliac artery to see how bad it is an if it needs a stent also. Hence the May Thunder Syndrome. So I’m hopeful and worried at the same time. I have two beautiful grand babies that I want to be able to run around with lol. Again thanks to everyone on here, it helps for us who have been through a lot.

Jump to this post

Wishing you well! I would really like to hear from you after testing and discussion.

REPLY
@jhmontrose

There is a woman on the MALS Pals group on Facebook, Robin Schrader, who has had a similar experience of open surgery (2 actually) followed by the artery collapsing from years of compression. I believe she had stents done and then a bypass or is waiting for a bypass. I would think they need to figure out if you have re-compression from scar tissue before deciding what to do (hopefully CTA will show what's going on). If you have re-compression you'll probably need another surgery (just what happened to me) because a stent would likely fail. If the artery has failed but there is no compression then a stent is a great option and would avoid another surgery.

Unfortunately I know nothing about May Turner but it is discussed quite a bit on the MALS groups on Facebook.

Jump to this post

Thank you. I’m hoping for just a stent and not another surgery. My original surgeon hasn’t had to go back in twice. So he’s a little nervous I’m doing it again. Mention it’s very risky and I would be on the table for at least 8 hrs unlike the 4 hour surgery to release the ligament. The May Thunder Syndrome has me wondering if it ties in with my compression issue.

REPLY
Please sign in or register to post a reply.