Median Arcuate Ligament Syndrome (MALS)

Hello @lmtuska,

I'm sorry to hear about your daughter's diagnosis, but so glad that you've come to the Connect Community.
MALS is such a rare disease, and because of the variety of symptoms, it can often be misdiagnosed. I'm confident that @kariulrich will join in with some answers and insight about her experience with MALS. I would like to tag @afternoonnapper1 too, who had discussed blockage of the celiac arteries, in the past.

In the meantime, I would also encourage you to read this article about research done at Mayo Clinic which discusses the effectiveness of endovascular repair involving branches of the celiac and superior mesenteric arteries: http://mayocl.in/1OS5tAf

@lmtuska, if you have any questions about coming to Mayo Clinic, please feel free to ask; we are here to help you. How has your daughter been coping with this condition, especially with regard to eating?

Hello, my 16 yr old Daughter has been diagnosed with MALS. We are coming to Mayo, MN, in February for an open surgery with a Vascular Surgeon. I, too, am interested in connecting with others to best understand this condition, follow up care and research resources. I would be interested in the webinar. Thank you Colleen!

Hi @kariulrich,

We have a fairly recent discussion on Celiac Artery Aneurysm; is there any connection between MALS and celiac artery aneurysms?
You can find the discussion here:
https://connect.mayoclinic.org/discussion/celiac-artery-aneurysm/

Thank you, Yes @lisa01 I am part of MALS PALS, but I do like the security of being here on Mayo connect vs Facebook when it comes to health information security. I was hoping that a group would start here for MALS. If we had enough patients here on Mayo Connect maybe they would consider doing a webinar in the future. I really like the format of this site. I have had Open Mals surgery twice, once for a bypass and then a revision several years later. If there is anyone interested in joining me here let me know.

Are you aware of a FB support group called MALS PALS. It is a support group for people suffering with MALS and their loved ones. It gives a tremendous amount of informstion of individual struggles, and various treatments and specialists that treat MALS. Highly recommended!!