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Median Arcuate Ligament Syndrome (MALS)
I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?
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I copied and pasted the link below, also here is what is listed for California (Thank you MalsPals for keeping this list updated!) California
Los Angeles
UCLA
Dr. Deugarte
Los Angeles
UCLA
Dr. Jimenez
Santa Monica
Dr. Anton Bilchik
Santa Monica
Dr. Quinones-Baldrich
https://lookaside.fbsbx.com/file/MALS%20DOCTOR%20LIST.docx?token=AWwI3i52nuBKa3mQdVrqnuJu_4YNLjmsFq3AdfX6RogtEg9FNzIyKBQ0_fLw-ny7cMtYG1Ue5GJwA4Gh3f_BxUd4nnFDQC-Lq_gVsB4h9BTEEoAeaDOF2spLXC9TkhOuX1sb1Btmcw3qIRN1w0jAKpexsxBoRE3HkLI7avXrfkbaQuZ6Gp1P98XmUDYllVEs6xOKZCIEGRZWXiM5_nBs3SAa
Welcome @cornishrex! When you see your vascular specialist ask them how may surgeries they do a year, what surgical approach they use and why? I sometimes go through the list of doctors at a medical center, many have bios and search what their area or interest is. Another way is go to google scholar and see who has published in the area of Celiac Artery Compression Syndrome. Always ask questions, it is ok to get second and third opinions. You will know when you find the doctor that best suits you.
Hello @cornishrex,
Welcome to Connect. I'm sorry to learn about your diagnosis, and glad that you've joined us here.
I’m confident that @kariulrich will reply to you soon. It helps so much to hear from others who have experience with the same condition. I'm also tagging @artistgma @evileye00 @lmtuska @evrose23 @jamorris9 @sarah1317 @coffeelatte @azbluebird who have all posted and shared their experiences in this discussion.
@cornoshrex, how are you managing your symptoms currently?
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1 ReactionThis web support page? malssupport.com I couldn't find anything regarding physicians here.
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1 ReactionI have been diaignosed w Mals recently. I am having surgery in Aug...There is a website MalsPals, you can join therm..Theres very good info on thst website.
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1 ReactionI was just diagnosed with Celiac Artery Compression Syndrome following a CT Angio. I am being referred to a vascular surgeon but would like to be sure to talk to one that is familiar with the syndrome. I live in San Diego and have access to the doctors at UCSD. How do I find one that will best be able to help me.
@azbluebird did you hear back from MalsPals? How are you doing??? I have been thinking about you.
Hi @carolina58! Welcome to Mayo connect, I have been diagnosed with MALS over a decade now and have had 2 surgeries. For me the pain has returned for a third time and I am in the process of ruling out other possibilities. Thank you for mentioning Mals Pals on facebook, my friend Robin is a moderator for that site and I find it to be helpful also. I was so happy when Mayo Connect came on with patient support, as I believe there is room for several online support groups. 3.5 years to be diagnosed! It amazes me how long patients have to endure pain to get relief. How are you doing since your surgery? Have you had any pain return?
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2 ReactionsHi
I was just diagnosed w mals.i thought i had the flu. Well its been 3.5 years later its a diagnosis of exclusion. Usually lots of tests prior w neg results. There is a site called Mals Pals. its a closed group so you are freeto discus sympotoms. Join itits loaded w info and very caring persons along the same journey.. I belong.feel free to check it out on facebook. It will really explain and helpi beong to it .. Good luck......i also had a Nissen Fundo done a few years ago. Full wrap. Carolina58