1. < Digestive Health
Profile picture for Kari Ulrich, Alumna Mentor

Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for bpayne
bpayne | @bpayne | Aug 3, 2017
In reply to @lmtuska "Hello, my 16 yr old Daughter has been diagnosed with MALS. We are coming to Mayo,..." + (show)
Profile picture for LisaT @lmtuska

Hello, my 16 yr old Daughter has been diagnosed with MALS. We are coming to Mayo, MN, in February for an open surgery with a Vascular Surgeon. I, too, am interested in connecting with others to best understand this condition, follow up care and research resources. I would be interested in the webinar. Thank you Colleen!

Jump to this post

What doctor at mayo do you see? Was it in Jacksonville fl?

REPLY
Profile picture for Sharon
Sharon | @cornishrex | Jul 29, 2017

Kari you are so wonderful at answering the questions. What is it about Celiac Artery Compression Disorder that causes gastrointestinal disorders? Between the doctors telling me I had GERD, a small hiatal hernia and very mild diverticulosis over the past 18 years none of that seems to explain the constant pain I have and the fact that I do become constipated easily. And I eat a mostly vegetarian, high fiber diet. I feel so much like I am being dismissed and written off by the diagnosis of the day instead of finding out the real problem. I am so glad this page is here. Still waiting to see a vascular surgeon familiar with this problem.

REPLY
1 reply
Profile picture for bpayne
bpayne | @bpayne | Jul 29, 2017
In reply to @kariulrich "Ha ha Got to love spell check! Do have any motility issues?" + (show)
Profile picture for Kari Ulrich, Alumna Mentor @kariulrich

Ha ha Got to love spell check! Do have any motility issues?

Jump to this post

Not sure what you mean by motility issues?

REPLY
Profile picture for Kari Ulrich, Alumna Mentor
Kari Ulrich, Alumna Mentor | @kariulrich | Jul 29, 2017

Ha ha Got to love spell check! Do have any motility issues?

REPLY
1 reply
Profile picture for bpayne
bpayne | @bpayne | Jul 29, 2017

That's a hida scan! Not sure what this spell check was saying!

REPLY
Profile picture for bpayne
bpayne | @bpayne | Jul 29, 2017

Yes egd, us of gallbladder and Judaism scan. All negative. All blood work is good.

REPLY
Profile picture for Kari Ulrich, Alumna Mentor
Kari Ulrich, Alumna Mentor | @kariulrich | Jul 29, 2017
In reply to @bpayne "I was just diagnosed 2 days from a CT scan and have appointment with vascular surgeon..." + (show)
Profile picture for bpayne @bpayne

I was just diagnosed 2 days from a CT scan and have appointment with vascular surgeon on August 1st. This is so scary not sure what to expect? More test envolved??

Jump to this post

Welcome @bpayne, Have you had any GI work up done? What symptoms ar you having? Depending on the doctor many like to have you get a celiac block first to see if it helps the pain or not.

REPLY
Profile picture for bpayne
bpayne | @bpayne | Jul 29, 2017

I was just diagnosed 2 days from a CT scan and have appointment with vascular surgeon on August 1st. This is so scary not sure what to expect? More test envolved??

REPLY
1 reply
Profile picture for Kari Ulrich, Alumna Mentor
Kari Ulrich, Alumna Mentor | @kariulrich | Jul 23, 2017
In reply to @cornishrex "Thanks Kari. I am close to UCLA but not convenient. As if that matters when it..." + (show)
Profile picture for Sharon @cornishrex

Thanks Kari. I am close to UCLA but not convenient. As if that matters when it comes to the surgery. After many years of unresolved pain and CT after CT I have a diagnosis from a CT Angio. Really, I wonder if it's a crazy fluke or some really great technician catching it.

I want my first visit to a vascular surgeon to be someone I am comfortable with and I want to be prepared with all my questions before I go. UCSD has some great doctors and I'll call tomorrow and see if their department can help me find the right doctor.

If this is the actual problem then I will feel great relief that I am not a hypochondriac! I have a pretty good health history. About 18 years ago I had a tubal pregnancy and when they did the laparoscopy to removed it they nicked my bowel and had to open me all the way up. Periodically since then I have diverticulitis attacks that come and go. Maybe every couple of years. When I complain about this pain they say it's GERD. My only other health condition is chronic migraines and it makes any medication or change in diet very difficult. I do have Hashimotos Thyroiditis which is autoimmune. Really, what I'm trying to say is that I don't suffer from other vascular or gastro problems. My first attack with this pain was 7 years ago in the middle of the night and we thought it was a heart attack. There was no diagnosis from that 3 day hospital stay. In the past few years the pain has been pretty constant, sometimes better than others.

I love first thing in the morning when I wake up and am lying there, for just a few minutes, when there is no pain. It is the nicest thing. Then the pain washes through me.

Jump to this post

You have been through so much! Unfortunately when it comes to celiac compression many of us have had such an extensive work up prior to being diagnosed. My Compression was found on a cath angiogram. I had symptoms for decades, going through so many different treatments and GI tests. Vascular disease seems to be a diagnosis looked at after everything else has been ruled out. Please keep me updated as you go through this process. Please know you are not alone, between Mayo Connect and MALS PALS you have a great group of people with you for this journey. I have had 2 surgeries and going through another work up to deal with relapsing pain, would have not made it if it was not the support and compassion with these communities! Have you had any weight loss with all your symptoms?

REPLY
Please sign in or register to post a reply.