Median Arcuate Ligament Syndrome (MALS)
I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?
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Thanks so much!
@robin0135, I noticed that you wished to post a URL to articles with your posts. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe.
Allow me to post them for you:
- The Brain-Gut Connection https://www.hopkinsmedicine.org/health/wellness-and-prevention/the-brain-gut-connection
- Cognitive Behavioral Therapy for Gastrointestinal Symptoms https://www.nm.org/conditions-and-care-areas/treatments/cognitive-behavioral-therapy
Sharing this info from Northwestern Hospital’s website…
Cognitive Behavioral Therapy for Gastrointestinal Symptoms
Living with chronic and unpredictable gastrointestinal (GI) symptoms can be stressful and can affect work, relationships, and our overall quality of life. Stress can negatively impact our physical health as well, and our GI tract is one of the first systems in our bodies to experience these consequences. Stress can directly impact the GI tract by interfering with the signaling between the brain and the gut and make GI symptoms worse.
Psychological interventions like cognitive behavioral therapy (CBT) target brain-gut dysfunction directly to improve GI health and also address stress management and lifestyle factors to improve patients’ health and well-being. Psychological or behavioral interventions are first-line treatments for some GI conditions and can be more effective than medications. For other conditions, these treatments are helpful in addition to medications.
According to the International Foundation for Functional Gastrointestinal Disorders (IFFGD), CBT is a form of psychotherapy that has consistently been shown to be effective in reducing the symptoms of functional digestive disorders, like IBS.
CBT can be a helpful tool in teaching individuals how their thoughts and behaviors can impact their symptom experience. CBT emphasizes patients’ understanding of their condition, the role of stress, and the impact of their thoughts, emotions, and behaviors on their symptoms. Patients learn skills to help change their physiological, cognitive, and behavioral responses to both GI symptoms and stress. Unlike CBT for depression or anxiety, CBT for functional GI disorders targets the GI symptoms, rather than treating the psychological distress associated with these symptoms.
CBT is a time-limited treatment, and most patients see significant symptom improvement by the end of the course of treatment, which is typically four to seven sessions, with one session every other week. Treatment is tailored to the specific symptoms and responses of the patient presenting for treatment. Some patients are not good candidates for CBT. At the first visit, your therapist will ask you questions to help come up with the best treatment plan for you.
The Behavioral Medicine for Digestive Health program is fully integrated into the Northwestern Medicine Department of Medicine and Division of Gastroenterology and Hepatology. The service is staffed* by psychologists and health psychology trainees with specialized training in digestive diseases, who will work directly with your gastroenterologist to coordinate your care.
My brother found an article on John Hopkins website Hopkins medicine.org (I wasn’t able to add the link). It’s titled The Brain-Gut Connection. I think it might be helpful to others on this platform.
Yes She had a CT angio - celiac artery was fine. She has a gastroenterologist who can’t figure out why she can not keep food down. After surgery she couldn’t keep food down then went home on a liquid diet hoping to move to soft foods. It never happened. It’s been 1 1/2 months since surgery. She’s now back in the hospital on a feeding tube to give her nutrients while they try to figure out why she still can’t keep food down. Anything she takes in, goes down and comes back up, even liquids.
@robin0135
I’m sorry your sister- in- law hasn’t recovered from the surgery. You said many tests have been done and all normal.
Did they do another CT angio to check the celiac artery?
After my latest intervention the pain disappeared at once but it took time before nausea, loss of appetite and fullness feeling improved. After 2 years I still don’t have good appetite and I can’t eat the same amount of food.
I have never heard of psychological issues.
Is she losing weight? Dehydrated, weak? Does she see a gastroenterologist?
Just hoping she had another CT angio.
My sister n law had MALS surgery 1 1/2 months ago Although the pain is gone she is still unable to keep any food down, not even a little Ensure. The surgery was successful and every test has shown there are no other issues. A nurse in another dept mentioned that some patients have to see a (psychiatric/psychologist - some type of other person) to help teach their body to digest food again after this type of surgery.
Thought? I see nothing online. Has anyone had this experience?
The sweats are the worst. That’s why people with dysautonomia don’t do well in the heat!!!!
Thanks for the info I will have to look into those meds. I have sweats and cold sweats from the dysautonomia too
I take Midodrine. 2.5 mgs every 4 hours. Lowers my heart rate. Makes my bp higher. Not high but closer to normal. Because my bo runs low and heart rate high. I also used to take metoprolol. It lowered my heart rate. But made my bp a little too low. There’s many different kinds. I go to a cardiologist for these meds and my issues because of dysautonomia