Mastectomy and breast reconstruction pros and cons?
Being treated for breast cancer, having a mastectomy and was wondering what people did for reconstruction?
Interested in more discussions like this? Go to the Breast Cancer Support Group.
Being treated for breast cancer, having a mastectomy and was wondering what people did for reconstruction?
Interested in more discussions like this? Go to the Breast Cancer Support Group.
I have the same scar and I had the doctors at the Breast Center in New Orleans and I highly recommend them. They even fixed an icky scar I had from my hysterectomy. You can hardly see the scar. I had a mastectomy with DIEP FLAP surgery immediately following.
The incision on my lower abdomen goes from the side of the hip to the side of the hip and goes down along the hairline. It is new so I’m not gonna know for a while how it will look.. I’m pretty sure I can wear bikini underwear and it would not show. I have feeling all along The scar. There is no pain. I have read that some people have numbness and pain and that their abdomen is distorted. I have none of that. If you are considering this, the best thing to do is find an excellent plastic surgeon. I found mine by going to a lecture at a local hospital and he was just a wealth of information and brought pics and described how he did things. I felt very safe with him and everything he has told me has been right on. I do not know where you live but would be glad to share his name with you. There is supposed to be a wonderful place in New Orleans with wonderful doctors. I think the key is the plastic surgeon. I think the radiation could damage your breast skin which may affect whether you could have nipple sparing surgery or skin sparing surgery. If you are thinking of having a mastectomy with the diep flap surgery you might reconsider the radiation. I do not know anything about your case and am not a doctor so take this information Lightly. If only one breast is involved then that changes a lot of stuff. Mine was bilateral.
Hi yahomich, I had neither chemo nor radiation before or after my surgery.
Hi thanks for sharing your thoughts! Did you have radiation?
can you share with me how your stomach scar is? how visible? does it cause soreness or weakness? thank you
You are a strong woman.You seem to be doing everything good. You are in my prayers
I have not heard of neuroendocrine cancer. Take care.
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Thanks for the info. Sounds like we both have rare and aggressive cancers that normally don't begin in the breast. Mine is in less than 0.5% of the population. And due to the aggressive nature, that is why they are doing PET scans every 6 months and now 3 months due to the new lesion in my lung. My first lesion in the breast was invasive ductal ca with erosion from the lymph nodes. We only found the neuroendocrine tumor because I insisted on MRI of the breast, otherwise, that would escape notice. In addition, I was lucky where I had surgery that the pathologist stained for neuroendocrine cancer. Many of these go unnoticed because not all pathologists due that staining. Steve Jobs had what everyone thought was pancreatic cancer, but in fact was actually neuroendocrine cancer of the pancreas.
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May I ask what the tumor was? The reason I ask is because the second lesion I had in the same breast was a very rare one to start in the breast, neuroendocrine cancer. It usually starts elsewhere and then spreads. I have had PET scans every 6 months since then as a precaution to be on the look out for spread and at the last one had a very small lesion in my lung which is too small to biopsy so will be having another PET scan now in 3 months.
The type of cancer I had is an uncommon type to find in the breast. The pathology report gave the name and type of it, which led me on a grand quest to learn all I could about this cancer and what I could do about it. I had not scheduled my surgery yet and I wanted to know what type of treatments were effective, what outcome I might expect, and if there were any new therapies on the horizon. With the name and type, I was able to find plenty of information about it. What I found was troubling.
Only one national study could be found with women who had this type of cancer in their breasts. It included 36 women who were followed for 10 years. The study described the different treatments that were given and the results of each. Neither chemo nor radiation had any positive effect, and in fact chemo made things worse. (My own genomics test following my surgery confirmed that neither were recommended.)
Of these 36 women, the first one died at the 9-month post-diagnosis mark. At the two-year mark, most were gone. At the 3-year mark, only one woman was still alive. That woman was still alive at the end of the 10-year study.
My question was why? Why did the one woman survive and the others didn't? What was it about this cancer that made treatments ineffective? I became quite proficient in my research to find everything I could learn to help myself.
After my surgery, they said I was a Stage III-A , which of course is dictated by how many tumors are found, how large they are, whether it has spread to other areas, whether lymph nodes are involved, etc.
Simple research on women with a Stage III-A diagnosis (not even considering the rare strain of cancer I had) showed that many women do not make it to the 2-year mark. Then, the next hurdle is making it to the 5-year mark. After 5 years, the odds of breast cancer death for a 'generic' Stage III-A go to 50%.
So, for me, it is a triumph that I have passed the 2-year mark and am still currently cancer-free.
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5 ReactionsHi, Catann. I hate that you are having to go through this, but I am thrilled to hear your overall prognosis is very good. I would like to know whether or not your cancer is triple negative. Mine was and I think it is helpful to know in order to figure out treatment, surgery, etc.