Lynch Syndrome & Colon Cancer

Posted by candacesusan1958 @candacesusan1958, Feb 24, 2023

Good morning, Iew to this discussion platform. Going thru the diagnostic testing for colon cancer. I'm a prime candidate as both brothers passed from colon/liver cancer. As well, my father.
My colonoscopy got rescheduled due to a major blizzard....so I'm left to wonder and worry ...I had uterine cancer in 2016.....so ...
The misery of gas, catapulting to the bathroom, extreme fatigue, and a new development of abdominal pain are quite distressing.
So far, no sign of blood, but I have developed a sever B12 deficiency. It may not directly be related to colon cancer....
Just feeling sick, alone, very isolated.
Thanks for listening 🙂

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bea1972 | @bea1972 | Feb 25, 2023

Hi,
I have Lynch Syndrome as well. I did not know about this gene when I first learned I had an inoperable brain stem tumor in my early 30's (I'm 51 now). Learned this while I lived in NY. Years of treatment and radiation - I am stable in the brain. But necrosis from radiation caused seizures. However, finally, they are managed by medication (took many tries to get this). I first learned I had colon cancer on 12/10/2016 when got violently ill at the Brookfield Zoo Christmas lights in the monkey/rainforest house. My ex-bf dropped me off at the ER later and that is when I learned. I've had many many surgeries since then and doing great. I am currently on Avastin and Keytruda and have my hair, energy, and I work full-time and am an avid hiker (like real peak hiking, not walking). I learned 3 yrs ago about my hereditary gene after my super healthy dad suddenly died of COVID-19. I wish I knew earlier so that I could have avoided some life mistakes and led the life I am now. I love nature and took my two beloved little dogs and myself to San Diego county this winter and plan to return to Chicagoland soon and sell my place and relocate where I can live, and not just exist. (still considering other areas with lots of nature, great cancer care and no harsh winters since I have awful neurapthy and no crazy heat/humidity since can't breathe well in that). I know all of this is scary - but please just eat well, get out and be active, laugh a lot, stay away from pain killers (unless absolutely necessary), and enjoy life. Half the battle is attitude.