Lymphedema Pain

Has anyone suggested compression garments. I wear compression socks along with compression capris for my lower body. Then I add in a compression T-shirt. I have more trunckal lymphedema. This along with a lymphatic massage every two weeks seems to help. This compression treatment is great during the cold weather but I can’t do it in the summer so much! I do believe this is lifelong. Nothing really cures it. Best of luck to you.

Was wondering how you’re doing. My mom appears to have lymphedema in her right arm. I’ve encouraged her to see her doctor, but she’s reluctant. She hasn’t had any cancer treatments or surgery on her arm. She has neuropathy due to vitamin deficiencies, for which she will not take her vitamins supplements. So not sure what is causing it. Hopefully, she’ll get a diagnosis.

I am still looking into what will best work for me. I have been trying move around more; massaging my legs just as the physical therapist showed me; I ordered ginger masaging oil from Amazon; and a wooden lymphatic paddle. I also got a lymphatic massager that heats up. I want to try more natural stuff, someone told me to incorporate more citrus (pineapples, oranges, grapefruits and lemon s) in my diet. I am really trying to get comfort before it gets worse. Thank you all for your ideas. Keep them coming.

Thank you.

I used full body redlight therapy. You might look into a membership or buy one. Usually Planet Fitness or a sun tanning salon.
Go to a facility that has one, tell them youd like to try a 1-3 month membership since this is for medical use. You may ask your accountant if you can deduct the cost of membership or buying a large redlight lamp.
It may give you the relief you're looking for.

Thank you, yes I will.

Thank you do much. My PT showed me the same technique. I will do better at using it.

Yes I will let you know what is going on.

@ladyq Welcome to Mayo Clinic Connect! It's not easy to be dealing with lymphedema, as you are finding out.

Here is what Mayo Clinic has to say about lymphedema: https://www.mayoclinic.org/diseases-conditions/lymphedema/symptoms-causes/syc-20374682 As you can see, there are different causes for it.

I hope you are able to get a different doctor and get the results you are looking for. Will you come back and let us know, please?
Ginger

So sorry to hear that you are dealing with lymphedema pain after chemo. I had lymphedema after having a 3-level fusion in my lower lumbar. My physical therapist did the lymphatic massage and it helped tremendously. She also taught me how to perform the massage on myself so I could continually move the fluid. Very helpful. God bless you as you move along with your journey. Prayers are being said for you.