Lymphedema of the neck: What did you do?

Posted by lilypilly @lilypilly, Jan 2 9:16am

Hello I have Lymphedema of the neck amd face following radiation/chemo for base of tongue cancer. Has anyone else experienced this? What did you do?
I get regular massage on it but I need more.
Also a very dry mouth and phlemn in the throat. Help?

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

Stanford university mechanical engineers and Gorgia Tech Woodruff College developed an injectable drug in trials and changed the flow of water near the sight of the cancer . The radiation treatments damage the lymph vessels that prevent the lymph vessels from squeezing out the liquid and in trials over many years reactivate these vessels and Stanford redirected the flow to reverse the flow to go out not in. The trial of one woman had 2 quarts of fluid in a leg and she had had breast cancer. Brandon Dixon
And his team saw that the nanoparticals that were in the
Drug reactivated these vessels
And kept them active again
Bay K 8644 went for FDA approval and I want to keep in touch with them as my hope is for their approval this year.
The pumps do after many months squeeze out fluid using them daily but some returns. I tried the one and it was hard to put on hooked up for months may not prevent fluid from returning and my Medicare did not cover pump which is expensive cumbersome.
You can call FDA keep informed as to approval. My latent effects
Of Lymphedema did not affect my neck but I go to private therapeutic massages wonderful but my scar tissue is
Problem with head mobility that makes massages stretch my head side to side up and down
.There are thousands of drugs each year seeking approval but this one has been finished in trials successfully but hope is there cross your fingers.

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I used a Flexitouch Plus to reduce and manage the lymphedema from the treatments. It worked quite well for me. Good luck as you move forward.

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@thomason

@lilypilly, did the machine help you at all? They say no news is good news.

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@thomason I have been using it for 2 days now. Even though the swelling doesn't look reduced, it is not as hard.
Thank you for checking in.

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@lilypilly, did the machine help you at all? They say no news is good news.

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@lilypilly, I wish you relief. Please inform if it helps!

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@thomason

Hello @lilypilly. It can be a little awkward. They do make handheld small ones that you can easily move around. The larger machine I recommended does work well for me. My neck gets hard as a rock, making it difficult to breathe and eat. It helps to move your head around until it feels comfortable, then move around so the machine gets to both sides of the neck. You can also pick the machine up and hold it, so it is easily massaging the front of the neck. They probably make newer types that are more lightweight. Mine is vintage! In addition, make sure the massaging heads are going downward, so the lymph fluid is being gently pushed downward. My machine has a switch, so the machine can massage upward, or downward. As the moderator so aptly says: "Radiation, the gift that keeps on giving!" Hey, we are alive, thank God!

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@thomason thanks again. I placed an order for the one you recommended. Should be here tomorrow.
I will update soon.

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Hello @lilypilly. It can be a little awkward. They do make handheld small ones that you can easily move around. The larger machine I recommended does work well for me. My neck gets hard as a rock, making it difficult to breathe and eat. It helps to move your head around until it feels comfortable, then move around so the machine gets to both sides of the neck. You can also pick the machine up and hold it, so it is easily massaging the front of the neck. They probably make newer types that are more lightweight. Mine is vintage! In addition, make sure the massaging heads are going downward, so the lymph fluid is being gently pushed downward. My machine has a switch, so the machine can massage upward, or downward. As the moderator so aptly says: "Radiation, the gift that keeps on giving!" Hey, we are alive, thank God!

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@thomason

This device works miracles for neck lymphedema:
Homedics Shogun Shiatsu Kneading Neck Head Massager Model SM-444 Portable Vintage

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@thomason can I use this at the front of my neck? That is where my swelling is.
TY

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@thomason

This device works miracles for neck lymphedema:
Homedics Shogun Shiatsu Kneading Neck Head Massager Model SM-444 Portable Vintage

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Wow thank you so much for the info!

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@lilypilly

Thank you so much and it really helps?
I will speak to my Dr.

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It really works great for me. I did a search on this forum and I know others use it, too. I still do daily self massage as well. I also wear a compression band at night. Right after my surgery I wore the band pretty much all the time.
https://www.designveronique.com/post-surgical/facial-wear/universal-facial-band/

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