Lymphedema of the neck: What did you do?

@pauley
Glad you hear your news.
You're in good hands.

@zenren14
Thank you very much! The appointment went well. I learned a lot and it's hopeful. Long road ahead still, however it sounds like eventually it will be manageable.
The RMT appointments start in January and I'll go twice a week for massage and measurements.
The RMT also ordered a compression collar to wear at night.

Thank you again! God bless

@pauley
sending you positive thoughts as you prepare for your appt and let us know how you're doing....only if your up to it.

Thank you @zenren14 !. I have an Appt with an RMT in a few weeks and hopefully I can get some releif.

God bless

Pauley

@pauley Hey there! I had a free flap reconstruction from my left forearm in April 2023. I got cleared from Onco to undergo MLD a year or so later. SLP showed me online exercises (Kelly PT - Cancer Rehab) which I religious did for a year. Until, I hired a RMT to perform MLD and since 9 months of treatment H&N lymphedema is well managed. I drink more water by mouth and swim in a pool which alleviates the H&N sensations. I like how you outweigh pain vs. discomfort. Run it by your team for further tips. Best!

After radio-osteo necrosis of the lower mandible I had Mandible flap reconstruction. Quite the ordeal. Since my lymphedema and been terrible in the jaw bone area and my neck. It's not painful however it cause a lot of discomfort.
Have any of these suggestions here actually helped any of you and made a difference?
Thanks
Paul

I also started using a vibration plate. I watch the YouTube videos from Kelly at Cancerrehabpt.com. Here is a link to the video. https://youtu.be/FUvzIBs4ZX0

She has a lot of info on her website for head and neck cancer and lymphedema.

@sandy8043 thank you so much for your response. I am looking into the facial comrression.

Sorry the Tactile pump is not available in Canada. I also wear a compression band at night. I use a chip bag with mine. Here is a link to the company that makes it. I use the basic #210 model. My first one came from my OT at Mayo. At first I wore it all day and night.
https://www.designveronique.com/post-surgical/facial-wear/

Hello I am 15 months post treatment for SCC base of tongue . The treatment left me with lymphedema of the face ...tongue and neck(below the chin). I wear a compression mask, weekly lymphedema massage and daily exercises. The Tactile machine is not available in Canada.I am looking for any other suggestions.If there is something that you do differently, please share.Thank you