1. < Heart & Blood Health

Lymphedema in legs

Posted by mariwy59 @mariwy59, Aug 2, 2017

I was diagnosed with lympedema in 2007. Due to unforseen circumstances I am now on disability so i cant stand for long periods of time without excruciating pain. I have to change so many things in my daily life but one thing that is bothering me is the pain I feel all the time .Try to do things to put in the back of my mind. My condition seems to be getting worse with the stiffness . I watch sit and fit on TV when can which helps some but the thought of not being able to walk at all has me terrified.

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spudmato | @spudmato | Oct 5, 2021
In reply to @perry1 "thank you. will insurances pay for pneumatic machine?" + (show)
@perry1

thank you. will insurances pay for pneumatic machine?

Jump to this post

Yes, Medicare with a prescription

REPLY
perry1 | @perry1 | Oct 5, 2021
In reply to @johnbishop "Hi @catladyde9 --- I was diagnosed with lymphedema a little over a year ago. When I..." + (show)
@johnbishop

Hi @catladyde9 --- I was diagnosed with lymphedema a little over a year ago. When I bought my first pair of compression sock the lady at the Mayo Store at the Rochester Mayo Clinic put them on for me and then took them off and walked me through how to do it using the grab the heel from inside the stocking and pull the sock halfway inside out. Then put your foot in it and pull the heel portion over your heel while pulling the sock up. I think this site has some good info, including how to use the donning gloves that are supposed to be easier although I've never used them. I've recently found some zippered compression socks that are way easier to get on your feet and then hold the sides together while pulling the zipper up.
https://www.brightlifedirect.com/blogs/news/help-i-can-t-get-these-compression-socks-on

Jump to this post

Thank you

REPLY
perry1 | @perry1 | Oct 5, 2021
In reply to @spudmato "My impression is that is a result of the heart’s inability to “ flush” the fluid..." + (show)
@spudmato

My impression is that is a result of the heart’s inability to “ flush” the fluid back in the legs. The reverse pathways are no longer working. The symptoms are generally not reversible; they are manageable. Leg massages help, and the daily use order a pneumatic machine is advised.

Jump to this post

thank you. will insurances pay for pneumatic machine?

REPLY
2 replies
spudmato | @spudmato | Oct 5, 2021
In reply to @colleenyoung "Hi @perry1, here is the discussion about lymphedema that I wanted you to see. Do you..." + (show)
@colleenyoung

Hi @perry1, here is the discussion about lymphedema that I wanted you to see. Do you know the cause of the lymphedema you are experiencing?

Jump to this post

My impression is that is a result of the heart’s inability to “ flush” the fluid back in the legs. The reverse pathways are no longer working. The symptoms are generally not reversible; they are manageable. Leg massages help, and the daily use order a pneumatic machine is advised.

REPLY
1 reply
perry1 | @perry1 | Oct 4, 2021
In reply to @colleenyoung "Hi @perry1, here is the discussion about lymphedema that I wanted you to see. Do you..." + (show)
@colleenyoung

Hi @perry1, here is the discussion about lymphedema that I wanted you to see. Do you know the cause of the lymphedema you are experiencing?

Jump to this post

no I do not know cause

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 4, 2021

Hi @perry1, here is the discussion about lymphedema that I wanted you to see. Do you know the cause of the lymphedema you are experiencing?

REPLY
3 replies
Mentor
John, Volunteer Mentor | @johnbishop | Sep 30, 2019
In reply to @catladyde9 "New to lymphedema -- just diagnosed after ultrasound scans of both legs and stomach area. Waiting..." + (show)
@catladyde9

New to lymphedema -- just diagnosed after ultrasound scans of both legs and stomach area. Waiting for custom compression socks ("untall" with very
short legs -- standard compressions stockings are far too long). My vascular surgeon told me to purchase rubber gloves similar to what they use
to assisting in donning/duffing the stockings. Where can these rubber gloves be purchased?

Jump to this post

Hi @catladyde9 --- I was diagnosed with lymphedema a little over a year ago. When I bought my first pair of compression sock the lady at the Mayo Store at the Rochester Mayo Clinic put them on for me and then took them off and walked me through how to do it using the grab the heel from inside the stocking and pull the sock halfway inside out. Then put your foot in it and pull the heel portion over your heel while pulling the sock up. I think this site has some good info, including how to use the donning gloves that are supposed to be easier although I've never used them. I've recently found some zippered compression socks that are way easier to get on your feet and then hold the sides together while pulling the zipper up.
https://www.brightlifedirect.com/blogs/news/help-i-can-t-get-these-compression-socks-on

REPLY
1 reply
exislander | @exislander | Sep 29, 2019
In reply to @catladyde9 "New to lymphedema -- just diagnosed after ultrasound scans of both legs and stomach area. Waiting..." + (show)
@catladyde9

New to lymphedema -- just diagnosed after ultrasound scans of both legs and stomach area. Waiting for custom compression socks ("untall" with very
short legs -- standard compressions stockings are far too long). My vascular surgeon told me to purchase rubber gloves similar to what they use
to assisting in donning/duffing the stockings. Where can these rubber gloves be purchased?

Jump to this post

Standard latex gloves bought at local drugstore. I use them and they work great.

REPLY
catladyde9 | @catladyde9 | Sep 29, 2019

New to lymphedema -- just diagnosed after ultrasound scans of both legs and stomach area. Waiting for custom compression socks ("untall" with very
short legs -- standard compressions stockings are far too long). My vascular surgeon told me to purchase rubber gloves similar to what they use
to assisting in donning/duffing the stockings. Where can these rubber gloves be purchased?

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Nov 18, 2018
In reply to @exislander "John, thank you for all your valuable information and to the specific Mayo Clinic sites. I..." + (show)
@exislander

John, thank you for all your valuable information and to the specific Mayo Clinic sites.
I have had two ultrasound procedures, July and September; neither showed any blockages. I had radical prostate surgery in 1992, which included biopsies of the lymph glands. I must assume now that I have failing left groin lymph gland.
Anyone’s thoughts.

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@exislander I hope you are able to see a Lymphedema specialist to help you figure out what's causing the leakage and come up with a treatment plan for you. I did find an article describing something similar to what you are going through that has some information that may be helpful.

Springing a leak: understanding and treating lymphorrhea
-- https://thelymphielife.com/2017/06/30/springing-a-leak-understanding-and-treating-lymphorrhea/

I'm tagging @kanaazpereira one of our moderators to see if she may have some suggestions.

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