Lupron: Anyone have muscle weakness and severe leg pain?
I have PC and have been on Lupron injections every 3 months for 15 months. I am experiencing severe leg pain in hamstrings and glutes. Has anyone else experienced this or tried monthly shots?
This has been getting worse for the last 3-4 weeks. I’m afraid I’ll be in a wheelchair or have to stop this form of testosterone elimination therapy.
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@jimbo12
Did the side effects diminish at all in the four years. Mine have diminished some after 11 months. Maybe ADT's should not be prescribed if you are over 80.
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2 Reactions@bonjas
The problem is that the side effects will probably last at least 9 months beyond the end of ADT treatment and could be for the rest of your life. More than half of men, especially those who are in their 80's, never recover from ADT. After 11 months I still have my side effects although they diminished some at 10 months.
Oh on the other note Eligard makes your sex drive to zero you are literally chemically castrated during your treatment period.
@pesquallie For hot flashes at night, don't wear pajamas to bed. When the flash comes on, toss any covers and lay there spreadeagled under a ceiling fan. Expose your crotch, armpits, wrists, and ankles, all of which are important for cooling. And sweat is your friend, as long as you let it work to cool you under the breeze from the fan. If you don't have a ceiling fan in the bedroom, get one. That investment will pay off richly during your time on ADT.
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3 Reactions@pesquallie
I had no idea that I would lose my muscle mass and thus my mobility.
I stopped Lupron four years ago, and I still have not recovered my previous mobility.
I am 89. So age is probably the reason.
Wish you a fast recovery from the side effects,
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1 ReactionHi all - if at all possible ask for Orgovyx. Many members here had great results after switching to it from Lupron.
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2 Reactions@pesquallie exactly I nearly threw in the towel but my oncologist encourage me not to, she said January is just around the corner, get yourself a fan for the hot flashes its help a little.
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1 Reaction@bonjas
I also had the sweating 24 hours/day plus severe headaches.
Unfortunately drugs company that's how they makes their money, oh I forgot to mention other side effects like hot flashes and night sweats.
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2 Reactions@bonjas
No warnings from doctors on these extremely painful and debilitating side effects. The manufacturers should be called to task. Household items come with safety precautions so why do these painful meds come with no precautions or suggestions. This should be illegal!
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