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Lower back pain / Right leg pain with numbness / burning / paralysis

Posted by @willwolf in Brain & Nervous System, Nov 28, 2011

Hi there I am thinking about requesting a appointment with the mayo clinic doctors to see if these folks can help me out and was wondering if there is someone on here who knows of the best doctor at the clinic that might have experience with what i have,
I constantly have pain in my lower back and constant pain in my right leg that travels all the way down to the bottom of my foot that is combined with tingling and burning and some paralysis on the right side only in my leg, the leg is tender to the touch and stops me from sitting for any length of time and it is effecting my sleep to where i only sleep a few hours each night and it prevents me from holding my wife at night ( ladies and men any suggestions on how best to hold your partner at night that would be more comfortable for me and enjoyable for my wife who loves but misses being wrapped in my arms )
I have had three major back surgeries which is funny because before i had surgery a few doctors said there was nothing wrong with my back or leg but low and behold the following surgeries were down.
I have had a surgeries on my lower discs and have had a laminectomy,microdiscectomy to remove the herniated disc and this was quit successful until recently i started to have pain and the same old feeling as before so i went back to the doctor who did the other surgeries after a few doctors told me there was nothing wrong and that i just had a sore back and after a few MRI and rays recently i have had a laminectomy with spinal fusion with implementation and i continue to have the same pain that i had when i first went in the last time to see the original doctor and although he tells me he does not see anything i ask him why do i still have the pain in my back and my leg,i got the impression that he wanted to admit he made a mistake or that the procedure did not work ( i would be fine either way but just be honest with me then i can make my own decisions)
One of the interesting things that i have noticed is that after this last surgery the pain and numbness and tingling and burning have all remained the same with the exception that i now have pain down my left arm starting at the elbow and extending downward and the only relief i get is when i walk around holding my arms up and out like a mummy
I do work alot of hrs ( Stay away from management,it will kill you lol ) and i do see a pain management doctor who does see and know that there is a problem but he just can't figure it out and he has referred me to the North American Spine Institute but i would be interested to learn if anyone here has had a similar problem or problems characteristic with mine?
Do the folks at the mayo clinic get to the bottom of the problem or just like a few doctors do they tell you oh you just have a sore back?
I can live with a 2 or a 3 level of pain but the 5 and 6 level of pain is becoming unacceptable unless i go on a stronger pain med which i do not want.
I thank you all for reading this as it was lengthy and hopefully informative enough that you could offer me advice or other places that you might have experienced better relief,better care,better outcome / results.
In closing i pray that you all have a very blessed year.

willwolf likes this

Posted by @jenifwazie, Dec 5, 2011

I'm so sorry you've been through so much. I'm afraid I'm in the same boat as far as being in the dark about my condition. I have had lower back pain for 20 years. I had back surgery last year to clean up the mess that was causing the sciatic pain, numbness and atrophy in my left leg. I now have the same pain along with the same symptoms starting in my right leg. My feet are feels like I'm wearing tight socks. And (i know it makes no sense) I have the same numbness and pain in my hands and arms now. I have migranes often & headaches daily. My neck hurts a lot!! Taking 3000 mg of Gabapentin has lessened the pain...i refuse to take pain pills. (been there, done that). MRIs of my neck, back and brain talk about scar tissue, arthritis and disc buldges. But my brain is OK. The docs say they don't know why I'm in so much pain. I also have a lot of pain from sitting. The surgeon said it would go away. It hasn't. I hope you find an answer. I hope anyone in a similar situation does too.

willwolf likes this

Posted by @willwolf, Dec 7, 2011

Jenifwazie i am so sorry to hear about all that you have been going thru as well and i do appreciate that you took the time to email me and i wanted to pass along something someone told me about the other day and i am getting ready to try it,anyways there is a product called C-1000 that is available at any vita-mart store and usually they are located in a mall,anyways you take a teaspoon of this powder daily and as it cleans the colon it also helps to heal,it basically is vitamin c in its purest form,but i have talked to at least 7 different people from different walks of life and lifestyle that have had alot of pain and issues with the same thing that people like you and i go thru and these people are having amazing results and hey if it does not do us that good like the other folks it surely cant hurt because it is another vitamin that we get into us and the other good thing that it is really cheap,i will you keep posted and let you know if it helps me.
Thank you once again for responding


Posted by @jenifwazie, Dec 8, 2011

Thanks so much for passing that on!! I will definitely give it a try.
I hope it works for us too!!!!


Posted by @anon37227499, Dec 12, 2011

Has anyone ever mentioned RSD/CRPS to you? I'm not saying that's what you have but it's something to research.


Posted by @jenifwazie, Dec 12, 2011

No, but I have read about it and although some of my symptoms are described, there are also some that are absent. The swelling and the changes in skin are not symptoms I have ever had. Thank you very much for the suggestion!! That may very well be a possibility!!


Posted by @rajan, Dec 14, 2011

If you have tenderness to touch, reduce ur fluid intake drastically. Drink 1 glass of water 1 hour before lunch and dinner. Restrict ur water (all fluids taken together) to 2 glasses in 24 hours. This should be followed by a day giving up water for 24 hours. Alternate this for about 10 days. U will fell the difference (very significant) after first 48 hours itself. From there take own decisions. For logic see my other replies on this forum.

I believe that any surgery is harmful as all surgeries cause scar tissues. The scar tissues caused due to surgery can almost never be done with. Or it is extremely difficult to manage in less then few years. Lower back pain can be managed in less then 48 hours after onset in most of the cases by giving up food and fluids for 48 hours.


Posted by @dmdouglass, Dec 16, 2011

Im sorry you have so much pain? Have they ever mentioned the possibility of a pinched nerve? I do agree with one of the statements in that there could be scar tissue pressing on the nerve. My cousin had back surgery and he lost total use of his one arm. But he is regaining use of it. Good luck! Did the same doctor do all the surgeries? May be time tofind another doctor?


Posted by @willwolf, Dec 16, 2011

Thank you for the replies and the thoughts and i to answer a few questions,i did stop going to the original docter after i noticed nothing changed in my back,the docter does see scar tissue but he says there is nothing he can do about it,its 330 am and i am awake with pain again, ( sorry i had a feel sad for me moment ) anyways the newest docter wants me to think about pu8tting in some kind of pain management pump that goes into your body and it is regulated by a remote, ( that would just be great,heck i sometimes lose the tv remote now can you only imagine ) hahah ,have is anyone tried this and what were your resulys ?
One again thank you all who have responded and i am wishing you a very blessed year and praying that some if not all your dreams come true this coming year.


Posted by @missnana, Jan 5, 2012

I feel your pain. I have been going to the Mayo clinic from MD since Nov. No answers so far. If your doctor is talking about putting in a Neurostimulator I would not do it. I have turned that down after much research and speaking to people who had it implanted. If he's talking about a medtronics intrathecal pump, I would go for it! I prayed for just one pain free day after suffering for 17 years, 2 lamanectomies, visiting doctors in 4 different states. I finally had the pump surgically implanted and was 2 1/2 years pain free. Unfortunately, something new is going on now and different pain is back even though I stilll have the pump. I'm praying again that the Mayo doctors can figure out my new issue but the 2 1/2 years was very much worth have the pump implanted I have benn suffering with these problems since 1987 wo don't give up although I know sometimes things seem hopeless. I just keep it in my mind that God doesn't give us any more than we can handle. Just put it in His hands and believe He is always there for you. I can say that because I turned my back for a while and things got worse. Now that I have turned back to God I have faith He will see me through this! Best of luck to you and your family!


Posted by @willwolf, Jan 6, 2012

Thank you and i will do research into the medtronics intrathecal pump,but if you do not mind,can you elaborate on how it helped you and what was the most uncomfortable thing while wearing this device ? was there any things that you could not do while wearing this pump? how does it monitor how much meds to put into your system?
I have a very physically demanding job that at times requires me to do a lot of lifting and stacking, so do you think it would get in the way and get bumped?
Have you ever heard of caudal epidural?
I know these are a lot of questions and when and if you reply i would appreciate it very much and yes i agree with your statement that it is our faith in god that helps us thru and i know for a fact it is his strength that carries me thru every day.
I pray that god continues to strengthen you and blesses your family.


Posted by @missnana, Jan 7, 2012

I had my 1st pump put in place in 2004. Everything is located inside the body. Mine is in my lower left abdomen. The doctor fills it with a needle right through the skin into the port on the pump. Believe it or not, I reallly can't even feel when he does it. Of course I talk the whole time and don't watch. I've learned through the years the really does make a difference. When I first had it implanted I felt like I could do back flips!! I have no restrictions as far as the pump goes. of course it is major surgery, so there are restrcitions becasue of the surgery. After you heal from that, I felt normal and did everything. Before they put the actual pump in they put a cathereter in with the meds to make sure it's going to work. As soon as I woke up from that surgery I felt like a new person! If you check out medtronics website they have a picture of the actual pump. I would recommend this to anyone who is sufffering from severe pain. The battery lasts about 5 years so I had my second one placed in 2009. I was unable to walk due to pain for 12 years before I had the 1st pump put in. PLEASE check it out!! God bless you and I sincerely hope you get relief!


Posted by @willwolf, Jan 7, 2012

I will check out the web site and i am glad to hear that this has worked for you and that you are so upbeat about it gives me some hope but one other question i have for you if you don't mind and that is with the pump in you,do you ever bump it against something and do you feel it from the outside if you were to run your hands along side of where it is located?
I thank you for all the information that you are sharing with me as it does help me to look at different procedures and to get feedback from folks who are in our shoes.
I pray that you have a great weekend and that you get out and do some back flips and dancing but just don't do them both at the same time,hahah,have a blessed weekend


Posted by @missnana, Jan 10, 2012

Yes, I can feel the pump if I touch the outside of the skin. I can actually like put my hand on the whole thing. I know that sounds odd since the whole hing is inside me. It really is wrth getting put in though. One day my grandson was standing on my lap and put his oot up on where the pump is. He actually stood on it & that's really the only time it hurt. I think it was his foot pushing it daown that make it hurt. I have never bunped it and hurt though. You can go onto Medtronics website or call them and they will tell you which doctors in your area implant and fill the pump.
Now if I can just get this new vascular problem taken care of I'll be back to normal. I have anohter appointment @ Mayo the end ofthis month with cardio/vascular. I'm hoping they have an answer as to what's causing all this swelling and burning in my leg. If it weren't for my belief in God I would have given up long ago! He is there for us any time we neeed someone to lean on and I have done a lot of leaning and praying to Hime. Things are getting better so I know He listens!! Best of luck to you. Please let me know how things work out for you. I know how you feel but don't give up hope!


Posted by @willwolf, Jan 11, 2012

Thank you and thank you for all the information that you have shared and i will be making my descison in the next few days,but it seems to me that the wya to go is the pump,but anyways i will pray that the vascular problem goes away and will pray the problem up to our father.


Posted by @help4son, Jun 24, 2012

Missnana, You sound like a wonderful person who has put her trust in God which is the best place to be. What Mayo Clinic do you go to? We live near the Jacksonville campus. You have certainly given me inspiration which I will pass on to my son. Thank You and God Bless you.


Posted by @deliasanderson, Jan 7, 2012

it sounds like you need a comprehensive diagnosis. have they looked at pressure on the sciatica nerve


Posted by @redocean, Feb 22, 2012

After reading your lengthly experience and most of the replies I feel like I may be of some help to you at least giving you an area to investigate that you may not have considered. If you want you can reach me by sending me an email on this site and I will personally answer you in detail. I have the exact same symptoms you have with the exception of no back surgeries...only injections. However, I did extensive research on anatomy and where my pain refers to and it is not simple but it may help you define some things so that they do not cut on you again. Cutting (surgery) only builds up more pain by scar tissue and scar tissue traps nerves which in turn can continue the pain cycle which is what happened to me.
Look forward to hearing from you


Posted by @redocean, Feb 24, 2012

Willwolf...please never apologize for having a feel said moment. We have every right. That's part of the reason we hurt so bad is that we all try to stay strong evey min of the day. And I love your humor about the remote. I hope the pain pump will help you --I've actually thot about it. And the vitamen C is a great idea because I don't think I get enough from food. Thanks again.


Posted by @help4son, Jun 24, 2012

My son has problems very similar to Redocean after two surgeries. I would be very interested in learning any information you may have that may help him. My email is Please feel free to contact me. Please put For Steven in the subject line. I hope you are feeling better. It sounds like my son is on the same pain cycle you were/are. Thank you.

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