Anyone have a spinal tumor? Hoping for recovery and support

Posted by selmasima @selmasima, Feb 24, 2022

I have a spinal tumor consisting of nerves and blood clots at the level of the T2 vertebra and a herniated disc in that area and I feel pain in my back in place of the tumor. Is there someone who has a condition like mine and how to heal or deal with the disease or if there is hope for recovery without medical complications. My age is 30. Thnks

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John, Volunteer Mentor | @johnbishop | Feb 25, 2022

I'm not sure if this is helpful or not but Mayo Clinic has some information on diagnosis and treatment of spinal cord tumors here -- https://www.mayoclinic.org/diseases-conditions/spinal-cord-tumor/diagnosis-treatment/drc-20350108

@milly93 posted in another discussion about some neuropathy symptoms going away after removal of a spinal cord tumor and may be able to share her experience.

selmasima | @selmasima | Feb 25, 2022

In reply to @johnbishop "I'm not sure if this is helpful or not but Mayo Clinic has some information on..." + (show)

Thank you for the answer and the explanation

Colleen Young, Connect Director | @colleenyoung | Feb 25, 2022

In reply to @selmasima "Thank you for the answer and the explanation" + (show)

I'd also like to bring @mmm and @nfrunner into the discussion as they may have experiences to share about spinal tumors.

@selmasima, is your tumor operable? Or what is your current treatment plan?

selmasima | @selmasima | Feb 25, 2022

In reply to @colleenyoung "I'd also like to bring @mmm and @nfrunner into the discussion as they may have experiences..." + (show)

They did not give me any treatments, they did not understand the disease in my country, and they did not tell me anything. I have an irm image file in cd and medical imaging images on my phone

Colleen Young, Connect Director | @colleenyoung | Mar 7, 2022

In reply to @selmasima "They did not give me any treatments, they did not understand the disease in my country,..." + (show)

@selmasima if you are interested in getting a second opinion at Mayo Clinic, you can request more information and an appointment here: http://mayocl.in/1mtmR63
See the section for international patients.

cheryljar | @cheryljar | Aug 5 6:11pm

My tumor is T12-Ll intradural, likely extramedullary. It was found 2 years ago and they wanted me to have it removed but I didn't. It is just starting to give me issues but I am so nervous about getting surgery.
Did you get your surgery? How did it go? Who was your doctor?
Any guidance will be really appreciated.

topsz | @topsz | Aug 6 12:13am

In reply to @cheryljar "My tumor is T12-Ll intradural, likely extramedullary. It was found 2 years ago and they wanted..." + (show)

I also have a meningeoma at T12 same type as yours. My symptoms came on after I broke my ankle and not I an having gait problems and just use a cane. All happened within 7 months. What are you going to do? Have you seen a neurosurgeon yet?