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Chondrosarcoma (Long bone cancer): How are you dealing with pain?

Posted by twinsplusone @twinsplusone, Apr 12 7:44pm

Does anyone else have long bone cancer/chondrosarcoma? This has come from a previous breast cancer.
How are you dealing with pain and a number of other issues that come with this disease?

Interested in more discussions like this? Go to the Sarcoma Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 13 9:52am

Welcome, @twinsplusone. I moved your question about chondrosarcoma and pain to the Sarcoma group

I'm inviting fellow members like @richard515 @skullbasecancer4 @dmopao80 @sherlock999 @smk25, who have experience with chondrosarcoma and may have advice to offer.

@twinsplusone, have you had any treatment to manage the sarcoma? It sounds like side effects of the disease are not yet under control. Do you see a pain management and/or palliative specialist to help?

REPLY
1 reply
twinsplusone | @twinsplusone | Apr 13 2:09pm
In reply to @colleenyoung "Welcome, @twinsplusone. I moved your question about chondrosarcoma and pain to the Sarcoma group I'm inviting..." + (show)
@colleenyoung

Welcome, @twinsplusone. I moved your question about chondrosarcoma and pain to the Sarcoma group

I'm inviting fellow members like @richard515 @skullbasecancer4 @dmopao80 @sherlock999 @smk25, who have experience with chondrosarcoma and may have advice to offer.

@twinsplusone, have you had any treatment to manage the sarcoma? It sounds like side effects of the disease are not yet under control. Do you see a pain management and/or palliative specialist to help?

Jump to this post

I have an appt with a pain management doctor coming up. Otherwise I am taking tramadol. The pain continues to get worse. What's next in this journey?

REPLY
1 reply
twinsplusone | @twinsplusone | Apr 13 2:11pm
In reply to @twinsplusone "I have an appt with a pain management doctor coming up. Otherwise I am taking tramadol...." + (show)
@twinsplusone

I have an appt with a pain management doctor coming up. Otherwise I am taking tramadol. The pain continues to get worse. What's next in this journey?

Jump to this post

I also am taking anastosal.

REPLY
richard515 | @richard515 | Apr 14 7:27am

For context I am 71.

I am on a base patch of 25mcg of Abstral with sublingual 200 mcg for breakthrough pain.

I take 5mg of Endone 3 times a day.

Big consequences for the digestive system.

Despite this I still have breakthrough pain daily. But the disease is very advanced now. Facing bedridden hospital palliative care.

REPLY
1 reply
richard515 | @richard515 | Apr 14 7:29am

I should add that these doses are keeping me alive I believe.

REPLY
twinsplusone | @twinsplusone | Apr 14 12:27pm
In reply to @richard515 "For context I am 71. I am on a base patch of 25mcg of Abstral with..." + (show)
@richard515

For context I am 71.

I am on a base patch of 25mcg of Abstral with sublingual 200 mcg for breakthrough pain.

I take 5mg of Endone 3 times a day.

Big consequences for the digestive system.

Despite this I still have breakthrough pain daily. But the disease is very advanced now. Facing bedridden hospital palliative care.

Jump to this post

Richard I am so glad you replied. I will show your list of meds to my doc. I am only taking tramadol and it's not very effective. How do your meds make you feel and how long have you known about your cancer? I am 81 and was diagnosed a year ago but have had it for at least 4 years. I am still mobile with a walker but the pain is constant. I think you have been on this path a little longer and would love to hear all about your journey. Any any information you can give me would be appreciated. Thank you for commenting

REPLY
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