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Local Support Groups Experience

Posted by docwatson @docwatson, Jan 13, 2023

I was treated at Mayo/PHX 3-1/2 years ago with PBT, and enormously satisfied with the results (PSA very low and holding). I’m active in a local support group helping guys with local resources and diagnosis/treatment options. However, we are struggling with attendance and leadership. Guys tend to be treated and then move on with their active lives. We are considering Zoom only meetings, and even cutting those short if there’s no newbies in attendance.. What are other guys doing, and do you have any suggestions for a successful support group. I’ve steered many a guy to this forum! Thanks in advance!

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hbp | @hbp | Jan 14, 2023

I live northwest of Los Angeles and I get treatment at UCLA. I used to live in Phoenix and if I were still there I would go to Mayo Clinic. I would find personal attendance at a support group burdensome but this online group is very helpful to me. I appreciate comparing notes with other guys who are having the same cancer problem as me and are in different stages of treatment. I am 75, Gleason 9 had RP, a year of lupron and Erleada, now off of all meds to see what happens now. Now PSA .06 testosterone 12

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