Lobular Breast Cancer: Let's share and support each other

Here I go again, wondering if my extreme tiredness will go away. Had Lumpectomy 3 1/2 weeks ago. The morning is better in A.M and then continues to drop around noon. The worst happens from 2 p.m. Has anyone else experienced this and if so, how long. Please let me know, Thanks

You deserve doctors you trust, and actually feel like they care. I'm in the midst of changing my oncologist. I tried hard to give him every opportunity; but eventually had to admit he wasn't in it for me.

Well, being 78 I haven’t had an OB/GYN or pelvic exams for several years. My PCP is not “hands-on” and never checked breasts even though I had ductal cancer/lumpectomy in opposite breast over 24 years ago. Evidently doctors just accept radiologist report and it ends there—at least mine did! I am angry and have not talked with PCP directly. Trying to concentrate on now but it’s hard! Now oncology surgeon is wanting me to have genetic counseling but can’t get straight answers that it would be covered by Medicare/supplemental insurance. Very disheartening and frustrating.

I'm so sorry to hear your story. Ignoring an egg-sized lump? That doctor should have his license taken away.

These decisions can be difficult to make. Is the surgeon refusing to do additional surgery to clean up the margin? If so, it might be time for a second opinion. Actually I might first ask the radiation oncologist, who would be an authority on this. Do keep in touch and tell us what you decide.

I have ILC stage 3. I had lumpectomy and finished radiation last September. I started Anastrozole last January so I have been on it for 1.5 years. I have arthritis and osteoporosis. Anastrozole makes both worse. My joints are very stiff when I wake. I found that walking 30 minutes a day helps a lot. I am trying to hold my osteoporosis in check by exercising and taking supplements. My numbers are stable with slight improvements. I am still active and can do most of what I was doing before. Good luck to you. Keep active and eat healthy.

Yes I’m also told hard to detect—but I had an egg-sized lump and was told “nothing to worry about”—until 15 months later when I was diagnosed! Just beginning long journey…letrozole, to shrink tumor then surgery. Hoping for lumpectomy instead of mastectomy. Angry that no one followed up sooner on this lump since I had lumpectomy on opposite breast 24 years ago! Healthcare is broken…

1.5 to 2 mm is so tiny that it's impressive that it was detected. The cancer I had was estimated at 5 mm by mammo and ultrasound. And totally undetectable by physical exam. Thanks to the increases in precision technology that are saving lives.