Lobular Breast Cancer: Let's share and support each other

Thank you for your support

I'm so sorry to hear your story. Ignoring an egg-sized lump? That doctor should have his license taken away.

Yes I’m also told hard to detect—but I had an egg-sized lump and was told “nothing to worry about”—until 15 months later when I was diagnosed! Just beginning long journey…letrozole, to shrink tumor then surgery. Hoping for lumpectomy instead of mastectomy. Angry that no one followed up sooner on this lump since I had lumpectomy on opposite breast 24 years ago! Healthcare is broken…

Hi,I too have had ILC. Lumpectomy in October. Radiation 3 wks in Dec. I've been on anastrozole for five months. Only recently have I had stiffness and pain in my legs. Really weird because I've never had that before. I'm 79 and I ride my bike some mornings. On other days I work out...rowing machine, etc. I think staying active helps along with a topical called Icy Hot. I'd like to work with this med as long as I can. Good luck to you! I have taken supplements for years, including glucosamine. We kind of have to dial things in as we go along, I think.

I'm surprised they put you on that drug. I was told if I have osteoporosis they would not give it to me. They did a bone density test, but my results are not in yet. I do have arthritis. I'm not sure if I will take it. Thanks for sharing

I have ILC stage 3. I had lumpectomy and finished radiation last September. I started Anastrozole last January so I have been on it for 1.5 years. I have arthritis and osteoporosis. Anastrozole makes both worse. My joints are very stiff when I wake. I found that walking 30 minutes a day helps a lot. I am trying to hold my osteoporosis in check by exercising and taking supplements. My numbers are stable with slight improvements. I am still active and can do most of what I was doing before. Good luck to you. Keep active and eat healthy.

I have ILC. Had lumpectomy 2 weeks ago. Saw an oncologist and she want to put me on Anastrozole. Anybody experiences are helpful.

it’s mentally

it’s 7 years for me and i am in remission but very anxious hate it. any time i do anything i am so stressed. yes im living and doing everything the drs say but i have not improved.

Thanks. I Am sleeping a little better. Still extremely tired. I was told that Tylenol is better for pain not Advil. I take 2 500mg every 4-6 hours and I have no pain. Thanks for the info about Mid-Nite.