Lobular Breast Cancer: Let's share and support each other

My surgeon/ breast specialists did not recommend any surgery. The radiologist does recommend a lumpectomy based on her training.

Hello, I am in the same shoe as you. My surgeon recommends taking tamoxifens 5mg daily and yearly mammogram. May I ask whether the surgery your doctor is recommending is lumpectomy or mastectomy?

Hi! Just recently diagnosed with ILC - just starting journey-in 2 weeks I meet with a surgeon at Dana Farber but have since I've ready ILC is "sneaky" I'm very anxious - I'm 57 yrs - E+,P-, HER-
and 1.6cm - do most breast surgeons treat ILC - seems uncommon and my surgeon is so very young. Thanks for any thoughtsxoxo

Thank you. I will reach out.

@southgawalker, I'd like to add my welcome. I moved your posts to this existing discussion in the Breast Cancer support group.
- Lobular Breast Cancer: Let's share and support each other https://connect.mayoclinic.org/discussion/lobular-breast-cancer/

I did this so you can read previous posts and connect with other post-menopausal women who have LCIS who can share their treatment experiences.

This discussion will also be of interest to you I think:
- LCIS: What treatment(s) did you choose? https://connect.mayoclinic.org/discussion/lcis-and-double-mastectomy/

Have you considered getting a second opinion?

I am glad you are looking for more information! If there is one thing I can really support it is getting informed. I am terrible at keeping track of links these days, but if you are thinking you would like a second opinion at Mayo there is a link for a request for appointment that I am sure another mentor could provide. @hopeful33250 or @johnbishop probably have it quite handy. They are amazing. Advocating for yourself is so important, especially when you are talking about cancer.
If not Mayo, are you close to a large center or teaching hospital?

LCIS was diagnosed through core needle biopsy in 2021. Watch every 6 months.
was surgeon’s suggestion in. April. No other options mentioned.
Yesterday the radiologist came out to talk to me after the mammogram and said her training indicates Surgery and then tamoxifen as the way to go.
Mayo is the best so I am looking for answers.

Hello @southgawalker , I am going to go out on a limb and guess that LCIS is lobular carcinoma in situ? There are several conversations about lobular cancer in the breast cancer group. I would encourage you to ask this question on the page; lobular cancer, let’s support each other. It is so frightening to hear the word cancer, there are a bunch of folks there who have been there and done that. Here is a link.
https://connect.mayoclinic.org/discussion/lobular-breast-cancer/
Since you must have had a biopsy to get this diagnosis, did your doctor give you those choices? Have you thought about a second opinion to look for a consensus?

Hello @southgawalker and welcome to Mayo Connect. I would encourage you to post this question on Connect's Breast Cancer discussion group. Here is the link to that group.

--Breast Cancer
https://connect.mayoclinic.org/group/breast-cancer/
I am tagging @trixie1313 and @auntieoakley to join this discussion.

On Mayo Clinic's website there is some information that you might find helpful. Here is the link
https://www.mayoclinic.org/diseases-conditions/lobular-carcinoma-in-situ/diagnosis-treatment/drc-20374535
@southgawalker,
Have you already had a biopsy? If so, what were your doctor's recommendations?

Anyone with recent LCIS diagnosis? What did your dr suggest you do? There appear to be two theories- surgery or watch with mammograms every 6 months.