Lobular Breast Cancer: Let's share and support each other

Hi @poesmom, I am in my 70s too (70) and I also had ILC in one breast stage 1a. I had IDC stage 1a in my other breast. I had a bilateral mastectomy and at my age I chose not to go through extra surgery for implants. I wanted you to know that I did not have chemo or radiation either. I was relieved not to have it but wondered if it would have given me some extra protection. But I went to Mayo Rochester for my surgery and treatment so I figured I was at a place on the forefront of treatment options. My ILC was triple negative and even so the oncologist and tumor board agreed on the no chemo decision. I am on Tamoxifen ( I have osteoporosis so that's why Tamoxifen even tho I am years past menopause) for the IDC which was estrogen positive. In the Breast Cancer Survivorship area of Mayo I was told that eating 7-9 fruits and vegetables a day would help to prevent recurrence and also daily exercise is very important so I am exercising and eating those 7-9 fruits and vegetables every day. Our goal on this site is to be a bc Survivor and I am sending out love and Survivor wishes to you and all on this site.❤️

Thanks. I'll probably pass on reconstriction. I'm 74 and can live with a prosthetic. Nice to know maybe no chemo.😎

I totally agree!! I have learned how different ILC is from IDC, and few articles, blogs, etc, differentiate.

I had ILC and had a bilateral mastectomy. I had no radiation or chemo. This was 3 months ago and I go for reconstruction later this month. 🙏🙏🙏 for you.

Spoke to surgeon today. Since mass sort of goes half way around and biopsy showed cancer at both ends of it she said mastectomy probably be better than lumpectomy. I'm ok with that. Who needs 2 boobs anyway at my age. All I'm wondering will I require chemo too. NOT !ooking forward to that at all! Been reading and they say they've been overly aggressive using chemo over the years and now they've decided it's not always neccessary. Got my fingers crossed😶.

I was diagnosed at stage 4 (bones) with no symptoms. Lobular is pretty sneaky. No lump. Nothing measurable but it's there. I'm on meds and feel fine.

My doctor found the mass doing my annual physical. Biopsy was yesterday, pathology report came today. LBC. Scary. I'm 74 so I got away without it for a long time. But, it caught me. Haven't spoken to the oncologist yet about treatment options. I'm assuming radiation and maybe chemo. I'll find out soon enough. DAMN! No symptoms at all. Glad to have this forum.

Thank you.

I had no symptoms either. It showed as a distortion on the mammogram. Had a biopsy and it is conclusive for invasive lubular carcinoma. They also found a second area of distortion in which their biopsy today.

Hi! I'm so with ya as I have my first scan this October after November 2022 surgery for ILC that was found on mammo ( barely as it was "questionable and ultrasound showed nothing but MRI picked up 1.8cm). I hope I don't have to beg for MRI or least alternating mammo and then 6 month later MRI!! I will update and good luck!