Lobular Breast Cancer: Let's share and support each other

Wow, 22 years, that is great. Did you take radiation, chemo and double mastectomy?

I am good but struggling with man medications.

Well good luck with your surgery today. I had Lobular breast cancer diagnosis in 2012 and it was stage 1-2 where it was multifocal (meaning mutiple tumors , they were small , and only in left breast) I had a double mastectomy to be on the safer side due to lobular's slightly higher tendency to show up again or else where.... I did not have a good surgeon or health insurance (no coverage really for follow ups & costly appts. w/ sometimes only a nurse even though I was paying for an oncologist follow up... for my treatment . I had a reccurrence , the surgeon was very hyper and flippant and made light of finding a few cells in 2 left nodes' dissection & did not recommend radiation. Within these 12 yrs of trying my best to eat healthy ( no nitrates, very little red meat and a lot of veggies and nonestrogenic foods (NO soy--read all labels for like soy in salad dressings etc) and I do not drink but maybe wine or beer once a month or so...a glass. I m fortunate that I left the state where I had substandard care and have pretty consciencious thorough care now, but I have metastatic to bone and I do not know if this occurred because of radiation.

Hey! At my last oncologist appointment, she said that they did more testing and that my cancer is NOT her2 positive after all so I may not have to get chemo!! I still may, they’re doing an oncotype (I think that’s the name:) and I go back at the end of the month to see if I will need chemo or if I will do hormone therapy. Thank you so much for checking on me! ♥️

Hi @ksmitty, have you started chemotherapy now? How are you doing?

A registered dietitian recommended I eat lots of protein during radiation treatment and afterwards. Be kind to yourself, rest, walk outside if possible, think on things are kind and things that make you smile. You can do it. Blessings

Along with the other suggestions, I'd add Mederma for your skin during/following radiation. And if your skin still feels irritated, don't be shy about asking your R/O for a steroid cream. It works wonders.

Good luck!

Hi! Following surgery, you’ll want clothing up top that’s easy to slip in and out of (ie buttons or zippers!) as it’s difficult to reach your arm up to slip something over your head. I hadn’t thought of this and struggled! Also a calendula cream once you start radiation. I used a product from My Girls, but there’s probably others out there. Go easy on yourself, rest when you need to, and eat healthy foods. All the best with your journey!

I have have ILC stage 2 and will have surgery on January 21 followed by 4 weeks of radiation. My prognosis is good. I've heard I need a breast support pillow and a non-underwire bra for post surgery. Does anyone have any other suggestions on how I should prepare for surgery and radition? Thank you.

I have recently been diagnosed with stage 1 lobular cancer. I had an MRI that showed on cancer in lymph nodes or chest wall. I will have a lumpectomy on Jan. 22nd. Then after healing will do radiology. Hope everything goes well. I just want together this over with. All my Drs. Said it was treatable, is breast cancer ever curable?