1. < Breast Cancer

Lobular Breast Cancer: Let's share and support each other

Posted by mjay @mjay, Jul 28, 2022

Since lobular breast cancer is only 10-15% of all breast cancer diagnoses and now understood to be a unique subset of breast cancer as a whole with different characteristics than ductal breast cancer necessitating different treatments and inherently different risks, I would like to see a separate category under the breast cancer forum so that the most appropriate info is being disseminated for this specific subset of BC. Just a thought.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

chatteronron | @chatteronron | Oct 23, 2024
In reply to @marshgirl24 "Yesterday I saw my medical oncologist and she was very reassuring. I needed that since my..." + (show)
@marshgirl24

Yesterday I saw my medical oncologist and she was very reassuring. I needed that since my general practitioner had been kind of discouraging about the lobular part. The medical oncologist has been practicing for about 12 years and most of her practice is ductal or lobular cancer. When I asked her about reoccurrences With lobular, she said that no she doesn’t see that. I’ll start on one of the medication‘s after my radiation but I need to get a little further out from my surgery.

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So glad to hear your oncologist is so knowledgable and reassuring. How is your surgery recovery going?

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1 reply
chatteronron | @chatteronron | Oct 23, 2024
In reply to @alibee "Sorry to hear you’ve joined our club! Those early days are nerve wracking and I feel..." + (show)
@alibee

Sorry to hear you’ve joined our club! Those early days are nerve wracking and I feel for you. Hang in there and just take it a day at a time. Wishing you the best as you navigate these new waters!

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Thank you so much! Sometimes my brain gets overloaded with all the new info but I still need to function in my daily life.
I am curious to hear if others with this BC subtype had any signs or symptoms before diagnosis.
New waters for sure. Appreciate your encouragement.

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1 reply
marshgirl24 | @marshgirl24 | Oct 23, 2024
In reply to @chatteronron "Hi, Thank you for the LBC Alliance resource. I am newly diagnosed with Lobular Breast Cancer..." + (show)
@chatteronron

Hi, Thank you for the LBC Alliance resource. I am newly diagnosed with Lobular Breast Cancer and seeing a breast surgeon next week. The Oncologist said I could contact her after I have surgery. There is not a lot of literature on this type of cancer so I’m at the beginning after getting my biopsy results after mammograms. Thanks!

Jump to this post

Yesterday I saw my medical oncologist and she was very reassuring. I needed that since my general practitioner had been kind of discouraging about the lobular part. The medical oncologist has been practicing for about 12 years and most of her practice is ductal or lobular cancer. When I asked her about reoccurrences With lobular, she said that no she doesn’t see that. I’ll start on one of the medication‘s after my radiation but I need to get a little further out from my surgery.

REPLY
2 replies
alibee | @alibee | Oct 22, 2024
In reply to @chatteronron "Hi, Thank you for the LBC Alliance resource. I am newly diagnosed with Lobular Breast Cancer..." + (show)
@chatteronron

Hi, Thank you for the LBC Alliance resource. I am newly diagnosed with Lobular Breast Cancer and seeing a breast surgeon next week. The Oncologist said I could contact her after I have surgery. There is not a lot of literature on this type of cancer so I’m at the beginning after getting my biopsy results after mammograms. Thanks!

Jump to this post

Sorry to hear you’ve joined our club! Those early days are nerve wracking and I feel for you. Hang in there and just take it a day at a time. Wishing you the best as you navigate these new waters!

REPLY
1 reply
alibee | @alibee | Oct 22, 2024
In reply to @mjmac "Wishing you the best next week!" + (show)
@mjmac

Wishing you the best next week!

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Thank you so much!

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chatteronron | @chatteronron | Oct 22, 2024
In reply to @alibee "Hello, and I’m very sorry to hear about your diagnosis. I’m about a year and a..." + (show)
@alibee

Hello, and I’m very sorry to hear about your diagnosis. I’m about a year and a half past my diagnosis and doing well. As far as I know, this subgroup is still active. If you look back at previous posts, you might find some answers to questions you have. Another resource that’s helped inform me is the Lobular Breast Cancer Alliance. Wishing you all the best!

Jump to this post

Hi, Thank you for the LBC Alliance resource. I am newly diagnosed with Lobular Breast Cancer and seeing a breast surgeon next week. The Oncologist said I could contact her after I have surgery. There is not a lot of literature on this type of cancer so I’m at the beginning after getting my biopsy results after mammograms. Thanks!

REPLY
2 replies
mjmac | @mjmac | Oct 20, 2024
In reply to @alibee "That was my path as well, straight to the lumpectomy. I had 5 days of targeted..." + (show)
@alibee

That was my path as well, straight to the lumpectomy. I had 5 days of targeted radiation after that and now I’m on the aromatase inhibitor, Letrozole, which I’ve tolerated really well. The whole process takes some time, start to finish which surprised me. Next week I have my one year follow up and can ask the questions I have about our specific BC.

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Wishing you the best next week!

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1 reply
marshgirl24 | @marshgirl24 | Oct 19, 2024
In reply to @alibee "That was my path as well, straight to the lumpectomy. I had 5 days of targeted..." + (show)
@alibee

That was my path as well, straight to the lumpectomy. I had 5 days of targeted radiation after that and now I’m on the aromatase inhibitor, Letrozole, which I’ve tolerated really well. The whole process takes some time, start to finish which surprised me. Next week I have my one year follow up and can ask the questions I have about our specific BC.

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Yes, that’s what they’re suggesting for me. Thanks for mentioning Letrozole. One thing at a time but I’m not looking forward to taking something. However, I realize that I have no choice (to discourage reoccurrence) and I’m grateful to have it caught early. I guess I have to heal before the radiation part.

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alibee | @alibee | Oct 19, 2024
In reply to @marshgirl24 "Thanks so much! I am reading past posts now to learn more. My lumpectomy was last..." + (show)
@marshgirl24

Thanks so much! I am reading past posts now to learn more. My lumpectomy was last week and next week I have an appointment with a medical oncologist. I’m beginning to wonder why my dr went directly to a surgeon. Just need to learn more about this lobular diagnosis. Thx for suggesting that Alliance.

Jump to this post

That was my path as well, straight to the lumpectomy. I had 5 days of targeted radiation after that and now I’m on the aromatase inhibitor, Letrozole, which I’ve tolerated really well. The whole process takes some time, start to finish which surprised me. Next week I have my one year follow up and can ask the questions I have about our specific BC.

REPLY
2 replies
marshgirl24 | @marshgirl24 | Oct 19, 2024

Thanks so much! I am reading past posts now to learn more. My lumpectomy was last week and next week I have an appointment with a medical oncologist. I’m beginning to wonder why my dr went directly to a surgeon. Just need to learn more about this lobular diagnosis. Thx for suggesting that Alliance.

REPLY
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