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Lobular Breast Cancer: Let's share and support each other
Since lobular breast cancer is only 10-15% of all breast cancer diagnoses and now understood to be a unique subset of breast cancer as a whole with different characteristics than ductal breast cancer necessitating different treatments and inherently different risks, I would like to see a separate category under the breast cancer forum so that the most appropriate info is being disseminated for this specific subset of BC. Just a thought.
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Hi,I too have had ILC. Lumpectomy in October. Radiation 3 wks in Dec. I've been on anastrozole for five months. Only recently have I had stiffness and pain in my legs. Really weird because I've never had that before. I'm 79 and I ride my bike some mornings. On other days I work out...rowing machine, etc. I think staying active helps along with a topical called Icy Hot. I'd like to work with this med as long as I can. Good luck to you! I have taken supplements for years, including glucosamine. We kind of have to dial things in as we go along, I think.
I'm surprised they put you on that drug. I was told if I have osteoporosis they would not give it to me. They did a bone density test, but my results are not in yet. I do have arthritis. I'm not sure if I will take it. Thanks for sharing
I have ILC stage 3. I had lumpectomy and finished radiation last September. I started Anastrozole last January so I have been on it for 1.5 years. I have arthritis and osteoporosis. Anastrozole makes both worse. My joints are very stiff when I wake. I found that walking 30 minutes a day helps a lot. I am trying to hold my osteoporosis in check by exercising and taking supplements. My numbers are stable with slight improvements. I am still active and can do most of what I was doing before. Good luck to you. Keep active and eat healthy.
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2 ReactionsI have ILC. Had lumpectomy 2 weeks ago. Saw an oncologist and she want to put me on Anastrozole. Anybody experiences are helpful.
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1 Reactionit’s mentally
it’s 7 years for me and i am in remission but very anxious hate it. any time i do anything i am so stressed. yes im living and doing everything the drs say but i have not improved.
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2 ReactionsThanks. I Am sleeping a little better. Still extremely tired. I was told that Tylenol is better for pain not Advil. I take 2 500mg every 4-6 hours and I have no pain. Thanks for the info about Mid-Nite.
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1 ReactionThese decisions can be difficult to make. Is the surgeon refusing to do additional surgery to clean up the margin? If so, it might be time for a second opinion. Actually I might first ask the radiation oncologist, who would be an authority on this. Do keep in touch and tell us what you decide.
Hi! @ sharonandkathy:
I am so sorry for what you've been through lately! My prayers go out for you upon reading your post...
Please be reminded that you just went through this surgery 2 weeks ago, no wonder you'd felt exhausted:( However, sleep and plenty of rest is needed for your body to heal properly. Please reach out to your care team, surely they'll provide you with an adequate solution to help you go through this rough patch of life. You'll feel better soon, my friend!
Wishing you all better health and brilliantly peaceful days on the journey ahead!
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2 ReactionsI'm reading "Outsmart Your Cancer" by Tanya harter Pierce. There are SO many ways to treat cancer in this book. The hardest part may be deciding which option to choose. Low Dose Naltrexone, Poly-MVA, Laetrile, are good for breat cancer. They say a lot about Protocel, but it's not the best for breast cancer. I wish you all the best and look forward to hearing your success story.