Lobular Breast Cancer: Let's share and support each other

Hang in there....life can only get better! I agree with a previous comment to see another oncologist in your area - while they have the same tools in the tool kit they might chose a different approach or select a different med for you. To be honest, I would look for a second opinion from two ends of the spectrum; one from an oncologist who has been practicing a long time (these days you can google them and get info about length of time practicing, where they got their degree, specializations, etc) and another (three opinions!) who recently began practicing. I say this because the long time physician should have seen just about everything and helped manage a lot of conditions and the young person because they are fresh out of training and will be up on the most recent advances or thoughts in how to manage BC. Although physicians are required to complete continuing medical education that don't always embrace new thoughts the way the young folk do. So take a deep breath, step into the light (shut down those dark thoughts), and regroup; find the support you need by seeking second opinions. I will you well...

@lifetravler
Thank You for the hug. I send You a hug as well
COG81

I have invasive globular #2 two lumpectomys now scheduled for complete mastectomy as cancer is in chest muscle.

I am just ahead of you at just over five weeks out. I started to feel less tired last week - I think I napped three or four days. Following I felt a need to nap just about every day. Grateful I could nap...

my oncologist turned me over to pcp. she said she has not mental health experience and i should take gi cocktail for stomach pain. the meds they gave me for mental pain gave me stomach ache. i am going to try to calm down. i did not do my exercise instead tried to relax before church. i have to calm down cause i start thinking dark thoughts and i don’t like them.

You can consult another oncologist. They vary greatly on opinions. Life is to short to feel depressed and tired

7 years remission, tired and depressed taking meds but they give me stomachache or can’t sleep.
At 5 years i was ned and i asked my oncologist did she think i would be ok but she said oh wound never say that, i don’t want to jinx anything. oncologist quit me back to pcp, they are very busy. i just hate my life, in remission but why can’t i let it go and relax and have a life. thanks im going to exercise now

Thank you so much. I'm 4 weeks out and still have extreme tiredness. I wish this would go away. It feels like I'm dying. You are the first person who has experienced the same. Are you still having the symptoms?

The information you've gotten is right on. The only thing I would add is that the onset of lymphedema is not always early in treatment. Mine was in my breast and underarm. It is exacerbated by flying and cuts or infection in my case, the left arm. Find a good pt/ot specialist and follow the workouts you are given. Wishing you the best

I experienced extreme tiredness as well; and commonly in the afternoon. I am almost five weeks out and am not feeling as tired. I slept, aka napped, when I needed to. Have faith you will recover and be less tired.