Living with a cervical esophagostomy/ spit fistula

Hi/ I’m new to this group. I had an emergency esophagectomy after the initial Ivor Lewis procedure failed. I was getting ready for a reconstructive procedure using the colon but was informed my cancer had metastasised to my liver so would not be getting the surgery. I’ve been living like this since July 2025 and was wondering if there are others in a similar situation and how you cope with it. Thanks