Anyone waiting for liver transplant and diagnosed with liver cancer?

I am in the same situation. Had y90 TARE treatment that killed the 3.5 cm single tumor. Just received exception points. All blood work is good. Doctor said I could get call within 8 to 16 months.

Im glad for you. This has been a rough 18 months with back surgery that failed to cancer diagnosis followed by medical retirement from a career he loved. He deserves the best and I hope Mayo is it because so far civilian and VA doctors have not helped. His civilian doctor got mad when I asked questions and when I wanted to know why certain things were being done. We will be there next week for testing, hoping for good things to hapoen.

I believe you will hit the jackpot at Mayo. We believe we have.

Thank you for for words of encouragement. Life has been an emotional journey since diagnosis til now. I’m praying Mayo Clinic will be the answer.

Great news. Once he starts the test it will be like super fast paced and very thorough. Everything from mindset, mental, and physical condition. I mean everything. Is checked and checked again.
I had more test added before approval. Good luck and mostly God bless you and your family.

No, but the VA will cover him but now they are dragging their feet. I contacted Mayo and he goes in for testing this month. Mayo is the best, he has great insurance so we are going to try Plan C while I work on Plan D,

Mayo JAX will not do the Y90 map and ablation unless you are already on the transplant list with cirrhosis.
As soon as I was listed they scheduled the procedure.
Does your husband have GEHA insurance?

I appreciate all of you sharing your stories on this site. My husband was diagnosed with HCC in October and had the y90 procedure In November.His AFP score dropped about 40 points right after the procedure and is back up to 200. His Dr says that there is only “residual debris” where the tumor was and yet he can’t explain why the AFP is still elevated and he is dragging his feet. He also has cirrhosis which doesn’t help. There was only one tumor and so far it hasn’t spread. The VA has recommended a transplant, so we are moving forward since the civilian dr isn’t working out. Has anyone else experienced a high AFP following ablation and it was attributed to something other than cancer?

Yes NASH and 2cm HCC. With a couple unknown cyst.
Finished evaluation Jacksonville Mayo. 3/10/23
I’m very much the same as you. I don’t know what I’m going to do or be listed yet. Hope no know soon.

Hi there. I developed liver cancer and had it ablated as well. They moved me to the top of the transplant list and said they would recheck in 6 months and if it had returned, I would never get the transplant. But in month 5, I was offered a liver and was transplanted. They examined my old liver and found that the cancer had returned but bcuz it was a month shy of being rechecked, I luckily was transplanted! I pray you get your liver!