Anyone waiting for liver transplant and diagnosed with liver cancer?

My son is 24. He had Y90 in January and a bland embolization on a second tumor in April at Mayo Clinic. He is listed for transplant. Luckily I have been approved to be his Living liver donor and surgery is July 23. Y90 completely killed the first tumor. At last CT the second tumor had 1.2 cm residual.

Hello,
I did not have the Y90 but did get the ablation as you say due to location of the tumor. That was in 2022. I was put on the transplant list after waiting for exception points. But, since then my MRI’s have indicated no new tumor so I have been able to get off the transplant list. I was told my tumor was slow growing too. You are in good hands at Mayo. They will do their very best and they are very good at that, best in the nation in my opinion, wishing you the best outcome. Please try not to stress too much even though it is hard. It was helpful for me to take it a day at a time when the stress was pressing. A positive attitude goes a long way towards improving health and quality of life.

Hi. So very sorry for your husbands situation. I had liver cancer and 2 Y90s which shrunk my tumors greatly. So much so that it bought me time to get on Mayos transplant list and then received a successful liver transplant.
Glad your hubbies Y90s were successful and shrank his tumor ! If Mayo says it is a slow growing cancer that is great too. One never knows but I have heard stories where when added to transplant lists folks got their livers much faster than expected/predicted. It sure would be great if there were no cancer at all but so glad the tumors shrunk so much and the cancer is slow growing ! And Mayo is the very best you are in great hands. I had 3 tumors and the Y90 bought me the time I needed. It could happen to you guys too. Very best of luck. Prayers up.

Hello
Not sure if this thread is still going but my husband has cirrohsis, has been alcohol free for 6 months, was denied ablation in November due to where the tumor was located and referred to mayo for treatments and was listed for transplant in February of this year. They did the Y90 procedure in February and in April tumor had shrunk and his tumor marker number went from 625 to 90. August will be when his Meld exception number cancer will be added to his current number which now is 18. Because we did not discover the tumor right away and even though it shrunk I am worried every-time we get checked I worry that a tumor is back or it spread taking us out of transplant. They reassure us it’s a slow growing cancer but it’s still cancer? Just looking for anyone who has a situation like this or have a spouse or someone they are going through with this. Thank you.

@vandi, I can see you are worried about your brother. Here is more information about cirrhosis from Mayo Clinic https://www.mayoclinic.org/diseases-conditions/cirrhosis/symptoms-causes/syc-20351487

You may also appreciate this blog post:
- Liver Transplant at Mayo Clinic https://connect.mayoclinic.org/blog/transplant/newsfeed-post/liver-transplant-at-mayo-clinic/

If you would like to learn more about treatment options, including possibly getting on the transplant list at Mayo Clinic, you can start by requesting an appointment here: http://mayocl.in/1mtmR63

Hi! My brother is suffering from grade 4 Cirrhosis. I am lost & need help with reference of a good doctor for him & which is the best place to register for a transplant.
Lately he has been sleeping all day , has severe shoulder pain & I am really concerned. Will appreciate your help 🙏🏻

Thank you, will do. Rick

@rwilliams1152 - Great to hear! This is a big step forward.
If you have not already done so, I encourage you to prepare a list of your own particular questions. And don't hesitate to ask the social worker to repeat or explain if you feel need for clarification.

Social worker from Kaiser calling today to explain everything. Rick

Hi Coleen, I have not been given a transplant social worker yet. I was told by Kaiser I would be getting one after my doctor submits everything. Rick