Liver disease itching: What helps?

Posted by jeanne5009 @jeanne5009, Nov 26, 2018

Does anyone have info or treatments for itching? My scalp and lower back have a very itchy rash. Tried ointment shampoo, antihistamine and steroids...wont go away. I am Stage 4 liver cirrhosis. Dermatologist and PVP are stumped.

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@keithb

My Meld score is 19 and they haven't even mentioned a transplant. Itching constantly, can't sleep at night, my nose bleeds,etc. I am looking for a second opinion. I'm using the VA at the moment but not sure they are that great

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I tried everything for the itching until I found spray on Benedryl. Take a shower, spray it all over, a light dusting of corn starch baby powder and you're good to go for the day. I too had horrible nose bleeds that left me hanging over the laundry sink for hours waiting for it to stop, I even fell asleep there once or twice. It went on for a year and a half until I found an ENT that cauterized the inside of my nostrils. No more nose bleeds. I used to leave the house with a change of clothes, towels, wet washclothes in case they happened while out. I was also told to only use Afrin regular nasel spray as anything else will make it worse. It's been seven years since the cauterization and no nosebleeds since.

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Check your meds some I was given I was highly allergic to I broke out in hives Spriolactiin was the culprit also any sulpha drugs

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I was itching like crazy before my transplant. Mentioned it to Mayo Doctor during evaluation weekand he prescribed this. Works almost instantly.

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Ask your Dr about hydroxyzine - it has helped my itching.

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Good morning from Canada
I used Aveeno oatmeal bath for the itch. Also used eucerine cream. It's a cream for psoriasis.
Hopefully this helps

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@jeanne5009

@rosemarya
Yep the waiting and watching phase for the next delightful symptom. The studying phase..the too little sponge phase. I look remarkably well...
.so they tell me. I was evaluated at Mayo Jax in June as a"good candidate" just "too early"
Meld is 8. I have a long way to go I guess. To me...that means that everything I have to endure til my time..will be passed on for others to study and absorb. I'm sure you have been there done that! Hoping my sarcastic sense of humor holds out.
Since Mayo is out of network on my plan, I use Tampa General for my go to hepatologist. When it's time I hope to go to Mayo.

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My Meld score is 19 and they haven't even mentioned a transplant. Itching constantly, can't sleep at night, my nose bleeds,etc. I am looking for a second opinion. I'm using the VA at the moment but not sure they are that great

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@sherry01

Hi I’m brand new here. I ran across this in a search on medicines I’ve been prescribed ! RIFAXMIN AND URSIDIOL
I am not sure I need these yet . I had HCC - they ablated the liver where I had the growth and after 6 week checkup - I’m well and my meld is an 8 and my blood work looks real good. But because I sd I am a bit forgetful and sometimes I forget words they prescribed me this medication with lactulose- they want me to “go” 5 times a day ??? I had gastric sleeve 4 yrs ago . Ain’t no way I’m “going”five times . And they gave these antibiotics. I don’t think I need them yet. I am not swollen or anything my liver doesn’t hurt . I don’t want to take medication. That lactulose is GROSS! I may vomit 5 times taking it ! Anyway I am going to call them . I think I’m forgetful and just move to fast due to adhd and other mental disorders that make me a bit “ dingy” but not due to liver . I’ve seen people who were that sick . Idk but I’m going to talk again to my drs. What is the opinion here guys? Thank you for letting me join. Also I’m on the transplant list - because I have had the cancer HCC.

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My 72 yo bf has HCC. This can cause ensepilapathy. Not sure on that spelling. He has problems remembering simple words and names. Very tired. He's stage 4. HCC is also causing Hepatopulmonary syndrome and he has a spot on his left lower lung. He just had a biopsy last Thursday. Waiting on results. His main problem is the itching. He can handle the other stuff but this is driving him insane. Just started Ursodoil yesterday. He has been prescribed everything under the sun for it. Lactose is his best friend. I'm researching methylene blue. It has good results for brain health and has also helped those with cirrhosis and HCC

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@donnarae3

I’d love to go to mayo clinic but to far. When I was told I had autoimmune help was in a study for it at the Scottsdale az. Loved the place

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I am also stage 4, the itching started about 1/2 years ago. Lower back, calves on legs, and gentials. Worst inching I ever had. Try hydroxyzine. 25 mg. Also was prescribed cholestyramine powder. They both have helped somewhat but I do get where I want to scratch like crazy.

Rick

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@donnarae3

Hello. I’m new here also was about 3 weeks ago I was told I have the HCC cancer. I’m going to the city of hope in Duarte ca. and upland ca. first surgeon told me no operation cause he didn’t think I would make it through the surgery cause I also have Copd chronic bronchitis also autoimmune hepatitis. So I just seen another doctor he suggested to do the ablation. Where they heat it up and kill it. It would probably be about month recovery I’ll be going for cat scans 4 x a year The dr said this HCC liver cancer is slow growing and common. He told me he couldn’t tell me how long I’ve had it. Now I have read up on this lol and I’m reading it’s an aggressive fast growing cancer and probable 5 years left to live. My dr says don’t believe everything u read. My dr made me feel 100 x so much better but I can’t get out of my mind what I’ve read. Can anyone give me some advise and what their going through with the HCC??? This is all new and I don’t even know what stage I’m in. Thank you for your time

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I’d love to go to mayo clinic but to far. When I was told I had autoimmune help was in a study for it at the Scottsdale az. Loved the place

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@sherry01

Hi I’m brand new here. I ran across this in a search on medicines I’ve been prescribed ! RIFAXMIN AND URSIDIOL
I am not sure I need these yet . I had HCC - they ablated the liver where I had the growth and after 6 week checkup - I’m well and my meld is an 8 and my blood work looks real good. But because I sd I am a bit forgetful and sometimes I forget words they prescribed me this medication with lactulose- they want me to “go” 5 times a day ??? I had gastric sleeve 4 yrs ago . Ain’t no way I’m “going”five times . And they gave these antibiotics. I don’t think I need them yet. I am not swollen or anything my liver doesn’t hurt . I don’t want to take medication. That lactulose is GROSS! I may vomit 5 times taking it ! Anyway I am going to call them . I think I’m forgetful and just move to fast due to adhd and other mental disorders that make me a bit “ dingy” but not due to liver . I’ve seen people who were that sick . Idk but I’m going to talk again to my drs. What is the opinion here guys? Thank you for letting me join. Also I’m on the transplant list - because I have had the cancer HCC.

Jump to this post

Hello. I’m new here also was about 3 weeks ago I was told I have the HCC cancer. I’m going to the city of hope in Duarte ca. and upland ca. first surgeon told me no operation cause he didn’t think I would make it through the surgery cause I also have Copd chronic bronchitis also autoimmune hepatitis. So I just seen another doctor he suggested to do the ablation. Where they heat it up and kill it. It would probably be about month recovery I’ll be going for cat scans 4 x a year The dr said this HCC liver cancer is slow growing and common. He told me he couldn’t tell me how long I’ve had it. Now I have read up on this lol and I’m reading it’s an aggressive fast growing cancer and probable 5 years left to live. My dr says don’t believe everything u read. My dr made me feel 100 x so much better but I can’t get out of my mind what I’ve read. Can anyone give me some advise and what their going through with the HCC??? This is all new and I don’t even know what stage I’m in. Thank you for your time

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