Did you have and how do you manage Letrozole side effects?

Posted by nana3131 @nana3131, Mar 13, 2023

I’m going to start Letrozole in few days. Want to know what side effect and if it go away after awhile . Thank you.

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alibee | @alibee | Oct 1, 2023

In reply to @frantik223 "Please let us know- I am about to change to letrozole from Anastrozole and would appreciate..." + (show)

I was switched to Letrozole 5 weeks ago after experiencing a rash when I started Anastrozole. So far so good for me with Letrozole. I initially had trouble getting to sleep at night, so changed to taking it at bedtime. I get the occasional hot flash and still have trouble with sleep at times, but that’s about it. Hopefully that’s all the side effects I’ll see. Good luck to you!

mossa | @mossa | Oct 1, 2023

In reply to @dlmdinia "I started on Letrozole with no issues for 9 months until I began chemo and radiation..." + (show)

Thank you for your reply! My oncologist has me taking a 2 week break. All of my pain stopped second day on break. I have 9 more years of AI’s-maybe switching back and forth will be way forward. Best wishes to you!

dlmdinia | @dlmdinia | Sep 30, 2023

In reply to @mossa "I have terrible joint pain and difficulty sleeping while on anastrozole last 10 months. Anastrozole put..." + (show)

I started on Letrozole with no issues for 9 months until I began chemo and radiation duing which time I didn't take the medication. After, a different oncologist switched me to Anastrozole. It took awhile, but I began having severe joint pain centered mostly in my knees. I also became aware of the other issues so common as well. After a year, a new oncologist switched me back to Letrozole and I also started collagen supplements which took care of the knee problems which by then almost had me crippled. I've two more years on AI'S and will wait it out while on the Letrozole.

nora305 | @nora305 | Sep 30, 2023

In reply to @nora305 "My doctor is having me discontinue letrozole for the next four weeks to see if the..." + (show)

Just wanted to comment on my experience with Letrozole that I wrote about last March 15th. My back pain DID go away when I discontinued letrozole (thank goodness), and my oncologist switched me to anastrozole. I have had much less painful side effects with anastrozole. So if one aromatase inhibitor doesn't work for you, try another. Nobody has to stick with one if it's too difficult. JMHO....

cctoo. Catherine Crowley | @cctoo | Sep 30, 2023

In reply to @frantik223 "Sorry to hear that. I am seriously considering not taking anything, do you ever feel that..." + (show)

me..not taking the Letrazole I have. Afraid. od pain but what to do?

bloncape | @bloncape | Sep 30, 2023

In reply to @nana3131 "No.it is better to have body ache than having cancer back. Please take it it is..." + (show)

It may be true that body aches are better than having cancer come back. I’m glad that your body aches are not that bad. However, not everyone is as fortunate. I think it’s important to keep in mind that some women experience body aches and other side effects resulting in very poor quality of life.

timely | @timely | Sep 29, 2023

In reply to @nana3131 "I wake up at middle of the night even before I started Letrozole .😫" + (show)

Try melatonin. The magnesium may help too but I have not used it..

timely | @timely | Sep 29, 2023

In reply to @frantik223 "Sorry to hear that. I am seriously considering not taking anything, do you ever feel that..." + (show)

I have to agree with that statement.
I have been on Letrozole since March 2023. Had some knee and hip pain which went away as I am taking natural remedies for arthritis which work also on Letrozole,
1) Glucosamine Chondroitin
2) Hyaluronic Acid (plant collagen)
3) Arthromax Advanced with Apres Flex.

4) You must also do some sort of exercise.