Curious to hear about side effects of Letrozole you experience

Posted by mjmac @mjmac, Oct 14 7:29pm

I’m curious to hear about any side effects of Letrozole that aren’t the normal joint/muscle aches and hot flashes.

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katgob | @katgob | Oct 14 8:23pm

mjmac

If you looked them up, there are a number of them. Personally, I have been on it for 2.5 years and I cannot name one that really affects me. Yet, I am not the average. Others have the ones you wrote. If you have had a bone density test, that is where i need to keep looking. I was just talking with my dentist today as i see my oncologist on Nov 7th. There is a shot my oncologist was scheduling me for even though she was just assigned to me. I had a bone marrow transplant in April, so that was a no go per my hematologist! We shall see Nov 7th. My last bone density in 2023 had me at the low end of osteopenia.

carrot47 | @carrot47 | Oct 14 10:47pm

I had bad fatique. The joint pain made it hard to sit or get up .
I am on Tamoxifen and it is better.

katgob | @katgob | Oct 15 9:12am

There are three AI's and more choices. Fatigue is real. Glad you found something carrot47.

Miriam, Volunteer Mentor | @mir123 | Oct 15 12:24pm

Is there a particular side effect you have experienced and re concerned about?

elizabet | @elizabet | Oct 16 8:06am

I find "fatigue" to be an understatement. I have extreme difficulty staying awake in the morning to eat my breakfast. Eventually. I give in and take a 2.5 hour nap. At night, I fall asleep using the toilet. My oncologist's response amounted to "pffft!"

mjmac | @mjmac | Oct 16 9:19am

In reply to @mir123 "Is there a particular side effect you have experienced and re concerned about?" + (show)

I’m feeling like I could start my period. Lower back aches, slight cramping and from what I’ve read it very well could be the Letrozole.

Miriam, Volunteer Mentor | @mir123 | Oct 16 9:47am

In reply to @mjmac "I’m feeling like I could start my period. Lower back aches, slight cramping and from what..." + (show)

This does sound noteworthy--maybe make an appointment to discuss with oncologist?

katgob | @katgob | Oct 16 7:24pm

I think when we have bad side effects it is time to tell the doctor if you have an online portal or call and get them a message.

claudiaovando1 | @claudiaovando1 | Oct 17 4:51pm

I am in Lupron and Letrozole so I don't know which one of them is given me hard time to pass the stool. It might the lack of estrogen. Yes, I did a colonoscopy and yes I seen a GI doctor but they haven't find anything and I don't think is constipation either. It's like the muscle either weakened do to lack of estrogen or something got messed up there because of these medications. That's the only big concern I have and the fact that my hips all the way down to my foot on one side hurts sometimes. I feel like I need to exercise every single day to make it better.