Leiomyosarcoma: What can I expect now?

Posted by kkhersh @kkhersh, Oct 10, 2022

Diagnosed with Leiomyosarcoma back in August 2021. had surgery to remove mass in upper right groin that same month. July 29th second round of CT scans showed nodules on Right upper lung - had surgery to remove those on Sept 15.
What can I expect now ? - meeting with Medical oncologist next week .

Interested in more discussions like this? Go to the Sarcoma Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Oct 11, 2022

Hello @kkhersh, and welcome to Mayo Connect. I was especially interested in your post as I have also had a rare form of cancer, neuroendocrine tumors/carcinoid cancer. Cancer is a difficult journey to travel and when it is rare it can lead to confusion and a lot of unanswered questions.

I looked on the Mayo Clinic website and found some information that might be helpful to you:
--Leiomyosarcoma
https://www.mayoclinic.org/diseases-conditions/leiomyosarcoma/cdc-20387733
@kkhersh,
What do you currently know about this disorder? Do you have a list of questions when you meet with the medical oncologist next week?