Left-sided face, teeth and jaw numbness & pain: Anyone else (MBC)?

Posted by tdesantis @tdesantis, Sep 19 7:34am

Wondering if anyone has this same awful pain and numbness. Its been almost 2 months. CT and MRI are not showing a reason. Waiting to see ENT and Neuro. Only on left side. Even my teeth do not have any feeling. I am on Xgeva since April but my oncologist and dentist does not think it is that?

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windyshores | @windyshores | Sep 19 8:49am

I have this too . Have you had any imaging? I cannot do contrast but a CT or MRI might be a good idea to check for an acoustic neuroma This can also be trigeminal neuralgia. A good neurologist can prescribe meds to help....

tdesantis | @tdesantis | Sep 20 7:07am

In reply to @windyshores "I have this too . Have you had any imaging? I cannot do contrast but a..." + (show)

Oh, yes. Lots of imaging.. and many doctors. All are puzzled. Started antiseizure meds yesterday after a visit to the neurologist. Possible TN. I also was told I am having muscle spasms in my ear. Not fun!

windyshores | @windyshores | Sep 20 7:28am

In reply to @tdesantis "Oh, yes. Lots of imaging.. and many doctors. All are puzzled. Started antiseizure meds yesterday after..." + (show)

So no connection to cancer, I hope. Tegretol is sometimes used but I cannot tolerate it. I am trying Baclofen. Hope your new med works!

Xgeva is the same med as Prolia. Was your calcium level checked? Here is an excerpt of side effect list online:

Denosumab may cause low calcium levels, especially if you have kidney problems. Take calcium and vitamin D as directed by your doctor. Your doctor will order calcium blood tests before your first injection and during treatment. Tell your doctor right away if you have any symptoms of low calcium such as

Muscle spasms/cramps
Mental/mood changes
Numbness/tingling
Fast/irregular heartbeat
Severe dizziness/fainting
Seizures

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