Learn About NETs and monthly meetings

Yes, @mikecincy, there is a monthly NETs meeting on Zoom on the first Thursday of the month from 5:30pm to 7:00pm ET. The next meeting is July 6. See details here:
https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-2/

is there a monthly meeting for this group? if so, would like to know the schedule.

The meeting and presentation yesterday was so very helpful and informative! Even in the introductions, I learned a lot about other people and their cancers, treatments and crooked and divergent paths of their journey with NETs. There were patients and caregivers present and participating which was also helpful because we heard different perspectives and questions. This was all so important to me and my husband as we listened and learned. Thank you.

Not getting monthly email invites so I can attend the Zoom group. Help. It is tonight again and still no invite so I can get in.

I understand, @ssimpson316. If he has a change of mind regarding you joining the Zoom group, please do so. We have many family members who are part of the group, since they have a family member with NETs. If you choose to not participate in the meeting, it may be helpful to just listen to the guest speaker and listen to what the other members have to say.

It is, of course, your decision.

Teresa, thank you for the invite. I am on the site as a spouse. I have learned so much here! My husband had a distal pancreatectomy and splenectomy for on 1/23/23. His recovery has been atypical, so much so that I hesitate to share it for fear of raising other’s anxiety for their own journey. Complicating the issue is that he is not one who wants to talk about it, or likes it when I do!

On Thursday, June 1, from 5:30 to 7 p.m. EST, Mayo Clinic will be hosting a virtual NETs Support Group Meeting via Zoom. Here is information regarding registering for the meeting. There will be a speaker, Dr. Bassam Sonbol, NET Specialist, Hematology/Oncology from Mayo Clinic Arizona.

There will also be time for the members of the group to discuss their experience with NETs.

In order to receive the Zoom link, please register in advance for this meeting as space is limited to 50 participants:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering you will receive a confirmation email containing information about joining the meeting
For Questions or Concerns please call 904-953-7266

I would especially like to invite some of the newer members of our NET discussion group including: @hollywood817 @keisham808 @vmchow @milagro45pr @elliwiemers @prasad3029 @jodaface02 @abby84 @mbg20 @pavlina60 @kwan @kellysg @ssimpson316 @magnum2
@badi @firepowr @thawk32 @pontiac @ptk1776 @judylong @trish07 @annct @beech18bob @ford68travel

Hi @mgb20,

I'm not sure if there is a way to register in advance, however, the meeting is always on the first Thursday of the month. You might try putting in on your calendar (phone or computer calendar) and set a notification. Then you can go to NETs discussion group and find the registration link.

Give that a try for the June meeting.

Hi - i am interested in participating in the next zoom call. Is there any way to sign up in advance? I tried to keep a lookout for the May call but missed the sign up notice. Thanks

Hello All in the NETs discussion groups. Here is a learning opportunity for all NETs patients and caregivers that is sponsored by the Carcinoid Cancer Foundation. Here is information on tomorrow's program available via Facebook or YouTube:

What: Luncheon with the Experts presented by the Carcinoid Cancer Foundation

Who: James R. Howe, MD, is the featured guest

When: Thursday, May 11, 2023 from 12 noon to 1 pm, Eastern Time

Where: CCF’s Facebook Page, https://www.facebook.com/Carcinoid/. Just come to the page at noon and the program will begin. There is no need to register nor is there a special link.

For anyone not on Facebook, each of the presentations in the series is available on CCF’s YouTube channel, https://www.youtube.com/user/CarcinoidNETs. To receive notifications of all new videos on our YouTube channel, CLICK LIKE, SUBSCRIBE and HIT THE BELL to receive notifications each time a new video is uploaded.

Dr. James R. Howe, is a Surgical Oncologist, co-director of the Neuroendocrine Cancer Clinic, Division Director of Surgical Oncology and Endocrine Surgery, and Professor of Surgery at the University of Iowa Carver College of Medicine. He specializes in taking care of patients with cancers of the pancreas, liver, GI tract, soft tissue sarcoma, melanoma, thyroid, parathyroid, and adrenal glands. Recently, he has developed a large clinical practice and research interest in the genetics of neuroendocrine tumors(NETs). His current research focus is the study of gene expression profiles in pancreatic and small bowel NETs to identify new targets for imaging and treatment, and collection of families to search for predisposing genes.

A joint initiative of the Carcinoid Cancer Foundation and LACNETS.