Learn About NETs and monthly meetings

Posted by Teresa, Volunteer Mentor @hopeful33250, Nov 15, 2021

There are many opportunities to learn more about this very elusive and hard-to-diagnose disorder called Neuroendocrine Tumors (NETs)/Carcinoids. When a new learning opportunity becomes available it will be posted here.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Jun 3 3:19pm

The Neuroendocrine Cancer Zebras meet monthly on Thursday, June 6, from 5:30 to 7:00 p.m. Eastern time (find your time zone). You can join the meeting virtually using Zoom.

The guest speaker this month will be Dr. Thor Halfdanarson, (https://www.mayoclinic.org/biographies/halfdanarson-thor-r-m-d/bio-20055636) a NET Specialist with Mayo Clinic, Rochester, Minnesota. Dr. Halfdanarson is well known to our NETs community and presents great information for NET patients and is willing to answer questions that you post. You won't want to miss this month's meeting!

Please click the link to register in advance for this meeting:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf

After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW, grossling.loriell@mayo.edu

Teresa, Volunteer Mentor | @hopeful33250 | May 14 9:16pm

There is a NETs Lunch and Learn Webinar with Dr. Jason Starr on May 30, 2024. For those of us who have met Dr. Starr, or have heard him speak, we know that this will be a great learning experience.

Attached is a flyer with more information about the meeting and how to register.

Shared files

FLaNET-ImportanceNETprog_May30-Flyer (003) (FLaNET-ImportanceNETprog_May30-Flyer-003.jpg.pdf)

Teresa, Volunteer Mentor | @hopeful33250 | Apr 27 7:39am

The Neuroendocrine Cancer Zebras meet monthly on Thursday, May 2, from 5:30 to 7:00 p.m. Eastern time (find your time zone). You can join the meeting virtually using Zoom.

The guest speaker this month will be Dr. Akash Sharma, Radiologist, Nuclear Medicine, Mayo Clinic Florida (https://www.mayoclinic.org/biographies/sharma-akash-m-d-m-b-a/bio-20306414)

Please click the link to register in advance for this meeting:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf

After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW, grossling.loriell@mayo.edu

Teresa, Volunteer Mentor | @hopeful33250 | Feb 29 8:01am

Hello All,

The Neuroendocrine Cancer Zebras meet monthly, via Zoom. Our next meeting will be Thursday, March 7, from 5:30 to 7:00 p.m. Eastern time (find your time zone). You can join the meeting virtually using Zoom. Each meeting features an invited guest speaker as well as a sharing time with each other. Topics include symptom and disease management as well as the emotional, physical, and financial impact of disease. This is a great way to ask questions of the guest speaker and to virtually meet and talk with other NET patients and share your experiences.

You must register in advance in order to obtain the Zoom link. Please click the link below to register:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf

After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW
grossling.loriell@mayo.edu

This is an especially good way for our newer NET members to become acquainted with other patients.

Teresa, Volunteer Mentor | @hopeful33250 | Feb 15 8:30am

I recently learned of a podcast on the topic of, "Bone & Brain Metastases in Neuroendocrine Cancer. The speaker is, Dr. Robert Ramirez of the Vanderbilt University Medical Center in Nashville, TN. Here is the link to the podcast:

https://www.lacnets.org/podcast/30?blm_aid=182396978

Colleen Young, Connect Director | @colleenyoung | Feb 11 1:48pm

In reply to @vidavitality1 "Hello, Is this being monthly, and if so, when will the next meeting be held online?" + (show)

Hi @vidavitality1,
The NETs monthly meeting is on the first Thursday of every month. The next meeting is March 7. You can see full details about when and how to join on Zoom here:
https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-10/

See all Events https://connect.mayoclinic.org/events/

Naturally, you can connect with other NETs members any day and time in the NETs online forum:
- Neuroendocrine Tumors (NETs) Support Group https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

vidavitality1 | @vidavitality1 | Feb 4 7:08am

Hello,
Is this being monthly, and if so, when will the next meeting be held online?

Teresa, Volunteer Mentor | @hopeful33250 | Jan 30 9:18am

The Neuroendocrine Cancer Zebras meets monthly on the first Thursday every month from 5:30 to 7:00 p.m. Eastern time (find your time zone). Our next meeting will be on Thursday, February 1. This month's speaker will be Dr. Moain Abu Dabrh, Integrative Medicine, at Mayo Clinic. You can join the meeting virtually using Zoom. Please note that in order to obtain the Zoom link, you must register in advance.

Please click the link to register in advance for this meeting:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf

After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW
grossling.loriell@mayo.edu

All are welcome. You do not need to be a Mayo patient in order to attend the NETs support group.

Teresa, Volunteer Mentor | @hopeful33250 | Dec 28, 2023

The Neuroendocrine Cancer Zebras meets monthly on the first Thursday every month from 5:30 to 7:00 p.m. Eastern time (find your time zone). Our next meeting will be on Thursday, January 4. This month's speaker will be Dr. Richard Taylor, Oncologist and Palliative Care, Cancer-Related Pain. You can join the meeting virtually using Zoom. Each meeting features an invited guest speaker. Please note that in order to obtain the Zoom link, you must register in advance.

Please click the link to register in advance for this meeting:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf

After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW
grossling.loriell@mayo.edu

All are welcome. You do not need to be a Mayo patient in order to attend the NETs support group. I would especially like to invite some of the newer NET members on Connect such as: @penlandtr1 @djchambers @maymaria @rs12122 @lindabees @emilyfaith @mcjelly @ocean3131.

lu7 | @lu7 | Dec 8, 2023

In reply to @jenniferrasigade "I didn't know that they weren't curable. I had Dr. Anthony, a neuroendocrine cancer specialist tell..." + (show)

My surgeon told me the same thing. My surgery was successful...distal pancreatectomy, spleenectomy, and cholecystectomy. Tissue came back clear. A year later it had metastasized to my liver. I'm not saying this to scare you. I'm saying it to remind you to not miss any follow up scans. I got busy and missed a couple when my husband had heart surgery. When I got the scan done, it was a big surprise. I'm getting great treatment and I'm doing well. Just be vigilant. There are so many treatments and new ones coming! Best wishes for you! Linda