Learn About NETs and monthly meetings

Here is information about a webinar tomorrow, March 20, from the Carcinoid Cancer Foundation. It is available through either Facebook or YouTube.

What: Luncheon with the Experts presented by the Carcinoid Cancer Foundation
Who: Delphine L. Chen, MD, is the featured guest
When: Thursday, March 20, 2025 from 12 noon to 1 pm, Eastern Time
Where: CCF’s Facebook Page, https://www.facebook.com/Carcinoid/. Just come to the page at noon and the program will begin. There is no need to register nor is there a special link.
For anyone not on Facebook, each of the presentations in the series is available on CCF’s YouTube channel, https://www.youtube.com/user/CarcinoidNETs. To receive notifications of all new videos on our YouTube channel, CLICK LIKE, SUBSCRIBE and HIT THE BELL to receive notifications each time a new video is uploaded.

Dr. Delphine L. Chen, Professor of Radiology at University of Washington, Wil B. Nelp, MD Endowed Professorship in Nuclear Medicine is a board-certified physician in nuclear medicine, a type of imaging that uses small doses of radioactive materials to assess, diagnose and treat diseases. Her expertise spans several nuclear medicine-based diagnostic tests and procedures such as positron emission tomography (PET). At Fred Hutch, she also serves as the director of molecular imaging. This fast-growing field examines how the body is functioning at a molecular or cellular level. Molecular imaging, which has its roots in nuclear medicine, provides insight about how diseases like cancer behave, which in turn can affect treatment decisions.

In addition to providing care, she is also an active researcher. One area of interest is how PET scan tracers can be used to determine whether or not a cell is dying. The idea is that this information could help determine how a tumor is responding to therapy and therefore guide treatment. Dr. Chen led the first in-human trial of these tracers, which has served as the foundation for multiple clinical trials currently being conducted at three major U.S. medical centers. These clinical trials are focused on how we can best use this tracer to identify patients who may respond to anticancer drugs called PARP inhibitors. She and her colleagues plan to expand that research at Fred Hutch.

NETs Support Group Meeting, Thursday, March 6, 2025; from 5:30.p.m.-7:00 p.m. EST

Guest Speaker: Madelynn Strong, RDN, LD, Nutritionist, Mayo Clinic Rochester
Location: Virtual (Zoom)

Please register in advance for this meeting as space is limited to 50 participants:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering you will receive a confirmation email containing information about joining the meeting

For Questions or Concerns please call 904-956-3089

Loriell Grossling, LCSW, OSW-C, MSW, Oncology Social Work, Section of Social Work
Phone: 904-953-7266; Fax: 507-422-0920
Email: Grossling.loriell@mayo.edu

Just a reminder that next Thursday, our NETs support group will be meeting via Zoom:
Upcoming virtual support group for all NET patients:
Support Group Meeting
Thursday, February 6, 2025, from 5:30 pm-7:00 pm EST
With Guest Speaker:

Dr. Heidi Connolly, Mayo Clinic Cardiologist
Presenting on Carcinoid Heart Disease
Location: Virtual (Zoom)

Please register in advance for this meeting as space is limited to 50 participants:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering you will receive a confirmation email containing information about joining the meeting

For Questions or Concerns please call 904-953-7266
Loriell Grossling, LCSW, OSW-C, MSW
Oncology Social Work, Section of Social Work
Phone: 904-953-7266; Fax: 507-422-0920
Email: Grossling.loriell@mayo.edu

To All Members of the NET Support Group:
NETs Support Group Meeting, Thursday, November 7th, from 5:30pm-7:00pm EST

Guest Speaker: Dr. Susanne Warner, Hepatobiliary and Pancreas Surgeon
Mayo Clinic Rochester

The Role of Surgery in Patients with NETs
Location: Virtual (Zoom)

Please register in advance for this meeting as space is limited to 50 participants:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering you will receive a confirmation email containing information about joining the meeting

For Questions or Concerns please call 904-953-7266

NETs Support Group Meeting

Thursday October 3, 2024, 5:30pm-7:00pm EST, Location: Virtual (Zoom)
Guest Speaker: Dr. Bassam Sonbol, NET Specialist - Hematology/Oncology, Mayo Clinic Arizona

Please register in advance for this meeting as space is limited to 50 participants:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering you will receive a confirmation email containing information about joining the meeting

For Questions or Concerns please call 904-953-7266
Loriell Grossling, LCSW, OSW-C, MSW, Oncology Social Work
Email: Grossling.loriell@mayo.edu

The Neuroendocrine Cancer Zebras meet monthly on Thursday, August 1, from 5:30 to 7:00 p.m. Eastern time (find your time zone). You can join the meeting virtually using Zoom. This month's meeting will be a Roundtable. During a Roundtable the members will have an opportunity to talk about their experiences with others in the group. You don't want to miss this meeting and talk with other members. You will need to register in advance in order to get the Zoom link.
Please click the link to register in advance for this meeting:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW
grossling.loriell@mayo.edu

I would like to extend an invitation to some of our newer members of the NET group like @sshindle @lovemyfamtopieces72 @beachboyarkansas @lrittmiller @tkredmon @jlsgt @steven1953 @cmhgiddy24 @colleenyoung and @netnan

The Neuroendocrine Cancer Zebras meet monthly on Thursday, June 6, from 5:30 to 7:00 p.m. Eastern time (find your time zone). You can join the meeting virtually using Zoom.

The guest speaker this month will be Dr. Thor Halfdanarson, (https://www.mayoclinic.org/biographies/halfdanarson-thor-r-m-d/bio-20055636) a NET Specialist with Mayo Clinic, Rochester, Minnesota. Dr. Halfdanarson is well known to our NETs community and presents great information for NET patients and is willing to answer questions that you post. You won't want to miss this month's meeting!

Please click the link to register in advance for this meeting:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW, grossling.loriell@mayo.edu

There is a NETs Lunch and Learn Webinar with Dr. Jason Starr on May 30, 2024. For those of us who have met Dr. Starr, or have heard him speak, we know that this will be a great learning experience.

Attached is a flyer with more information about the meeting and how to register.

The Neuroendocrine Cancer Zebras meet monthly on Thursday, May 2, from 5:30 to 7:00 p.m. Eastern time (find your time zone). You can join the meeting virtually using Zoom.

The guest speaker this month will be Dr. Akash Sharma, Radiologist, Nuclear Medicine, Mayo Clinic Florida (https://www.mayoclinic.org/biographies/sharma-akash-m-d-m-b-a/bio-20306414)

Please click the link to register in advance for this meeting:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW, grossling.loriell@mayo.edu

Hello All,

The Neuroendocrine Cancer Zebras meet monthly, via Zoom. Our next meeting will be Thursday, March 7, from 5:30 to 7:00 p.m. Eastern time (find your time zone). You can join the meeting virtually using Zoom. Each meeting features an invited guest speaker as well as a sharing time with each other. Topics include symptom and disease management as well as the emotional, physical, and financial impact of disease. This is a great way to ask questions of the guest speaker and to virtually meet and talk with other NET patients and share your experiences.

You must register in advance in order to obtain the Zoom link. Please click the link below to register:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering, you will receive a confirmation email containing information about joining the meeting.

Location: Zoom online meeting
Contact: Loriell Grossling, LCSW
grossling.loriell@mayo.edu

This is an especially good way for our newer NET members to become acquainted with other patients.