Learn About NETs and monthly meetings

Posted by Teresa, Volunteer Mentor @hopeful33250, Nov 15, 2021

There are many opportunities to learn more about this very elusive and hard-to-diagnose disorder called Neuroendocrine Tumors (NETs)/Carcinoids. When a new learning opportunity becomes available it will be posted here.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

annie12345 | @annie12345 | 4 days ago

Thank you for sharing this

Teresa, Volunteer Mentor | @hopeful33250 | 4 days ago

I would like to invite all of the Members of the NET support group to a virtual support group meeting via Zoom. Here are the details.

Support Group Meeting, Thursday, July 3, 2025, 5:30 pm-7:00 pm EST

With Guest Speaker: Dr. Jacob Core, D.O.
https://www.mayoclinic.org/biographies/core-jacob-m-d-o/bio-20534766
FLA-Interventional Radiology; Location: Virtual (Zoom)
Jennifer Markowitz is inviting you to a scheduled Zoom meeting.
Please register for this meeting to obtain the Zoom link,
https://mchealth.zoom.us/meeting/register/wcWv-MZNTAOg_NU5Xw8jLQ
Please register in advance for this meeting, as space is limited to 50 participants

Some of our newer members might find this group to be especially helpful, including: @susan @kole03 @susan481 @zacharycat @annie12345 @llr9f @ggiinnaa @robin5 @karenfouquet

Teresa, Volunteer Mentor | @hopeful33250 | Apr 25 3:16pm

All members of the NETs support group on Mayo Connect are invited to this virtual support group meeting. Here are the details:

Jennifer Markowitz is inviting you to a scheduled Zoom meeting:
Support Group Meeting, Thursday May 1st, 2025, 5:30pm-7:00pm EST

With Guest Speaker: Dr. Ayse Tuba Kendi, of Mayo Clinic Rochester
Information about the guest speaker can be found here, https://www.mayoclinic.org/biographies/kendi-ayse-tuba-m-d/bio-20258451

Zoom link:
https://mchealth.zoom.us/j/97877572592?pwd=AGnuvsdyJbT5ovuoWY9bzn5aJAUKtb.1
Meeting ID: 978 7757 2592
Passcode: 136304

Teresa, Volunteer Mentor | @hopeful33250 | Apr 1 9:26am

An invitation to all members of the Mayo Connect NETs support group. Please join us at this Roundtable Discussion, this Thursday. Remember to register in advance in order to receive the Zoom link.
Here are the details
NETS Support Group Meeting
Thursday, April 3rd; 5:30pm-7:00pm EST

Round Table Discussion
Location: Virtual (Zoom)
Please register in advance for this meeting as space is limited to 50 participants:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering you will receive a confirmation email containing information about joining the meeting

For Questions or Concerns please call 904-953-7266
Loriell Grossling, LCSW, OSW-C, MSW
Oncology Social Work
Section of Social Work
Phone: 904-953-7266

Teresa, Volunteer Mentor | @hopeful33250 | Mar 27 9:06am

Here is a link to an article from the FDA website about a new drug, recently approved for the treatment of pNETs:
https://www.fda.gov/drugs/resources-information-approved-drugs/fda-approves-cabozantinib-adults-and-pediatric-patients-12-years-age-and-older-pnet-and-epnet

Teresa, Volunteer Mentor | @hopeful33250 | Mar 19 11:09am

Here is information about a webinar tomorrow, March 20, from the Carcinoid Cancer Foundation. It is available through either Facebook or YouTube.

What: Luncheon with the Experts presented by the Carcinoid Cancer Foundation
Who: Delphine L. Chen, MD, is the featured guest
When: Thursday, March 20, 2025 from 12 noon to 1 pm, Eastern Time
Where: CCF’s Facebook Page, https://www.facebook.com/Carcinoid/. Just come to the page at noon and the program will begin. There is no need to register nor is there a special link.
For anyone not on Facebook, each of the presentations in the series is available on CCF’s YouTube channel, https://www.youtube.com/user/CarcinoidNETs. To receive notifications of all new videos on our YouTube channel, CLICK LIKE, SUBSCRIBE and HIT THE BELL to receive notifications each time a new video is uploaded.

Dr. Delphine L. Chen, Professor of Radiology at University of Washington, Wil B. Nelp, MD Endowed Professorship in Nuclear Medicine is a board-certified physician in nuclear medicine, a type of imaging that uses small doses of radioactive materials to assess, diagnose and treat diseases. Her expertise spans several nuclear medicine-based diagnostic tests and procedures such as positron emission tomography (PET). At Fred Hutch, she also serves as the director of molecular imaging. This fast-growing field examines how the body is functioning at a molecular or cellular level. Molecular imaging, which has its roots in nuclear medicine, provides insight about how diseases like cancer behave, which in turn can affect treatment decisions.

In addition to providing care, she is also an active researcher. One area of interest is how PET scan tracers can be used to determine whether or not a cell is dying. The idea is that this information could help determine how a tumor is responding to therapy and therefore guide treatment. Dr. Chen led the first in-human trial of these tracers, which has served as the foundation for multiple clinical trials currently being conducted at three major U.S. medical centers. These clinical trials are focused on how we can best use this tracer to identify patients who may respond to anticancer drugs called PARP inhibitors. She and her colleagues plan to expand that research at Fred Hutch.

Teresa, Volunteer Mentor | @hopeful33250 | Feb 28 7:21am

NETs Support Group Meeting, Thursday, March 6, 2025; from 5:30.p.m.-7:00 p.m. EST

Guest Speaker: Madelynn Strong, RDN, LD, Nutritionist, Mayo Clinic Rochester
Location: Virtual (Zoom)

Please register in advance for this meeting as space is limited to 50 participants:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf
After registering you will receive a confirmation email containing information about joining the meeting

For Questions or Concerns please call 904-956-3089

Loriell Grossling, LCSW, OSW-C, MSW, Oncology Social Work, Section of Social Work
Phone: 904-953-7266; Fax: 507-422-0920
Email: Grossling.loriell@mayo.edu

Teresa, Volunteer Mentor | @hopeful33250 | Jan 30 4:06pm

Just a reminder that next Thursday, our NETs support group will be meeting via Zoom:
Upcoming virtual support group for all NET patients:
Support Group Meeting
Thursday, February 6, 2025, from 5:30 pm-7:00 pm EST
With Guest Speaker:

Dr. Heidi Connolly, Mayo Clinic Cardiologist
Presenting on Carcinoid Heart Disease
Location: Virtual (Zoom)

For Questions or Concerns please call 904-953-7266
Loriell Grossling, LCSW, OSW-C, MSW
Oncology Social Work, Section of Social Work
Phone: 904-953-7266; Fax: 507-422-0920
Email: Grossling.loriell@mayo.edu

Teresa, Volunteer Mentor | @hopeful33250 | Oct 31, 2024

To All Members of the NET Support Group:
NETs Support Group Meeting, Thursday, November 7th, from 5:30pm-7:00pm EST

Guest Speaker: Dr. Susanne Warner, Hepatobiliary and Pancreas Surgeon
Mayo Clinic Rochester

The Role of Surgery in Patients with NETs
Location: Virtual (Zoom)

For Questions or Concerns please call 904-953-7266

Teresa, Volunteer Mentor | @hopeful33250 | Sep 24, 2024

NETs Support Group Meeting

Thursday October 3, 2024, 5:30pm-7:00pm EST, Location: Virtual (Zoom)
Guest Speaker: Dr. Bassam Sonbol, NET Specialist - Hematology/Oncology, Mayo Clinic Arizona

For Questions or Concerns please call 904-953-7266
Loriell Grossling, LCSW, OSW-C, MSW, Oncology Social Work
Email: Grossling.loriell@mayo.edu