Lack of feeling and dropping everything

Posted by Rick Minor @juviijazz, Oct 31, 2023

I have advancing Poly Neuropathy. Currently, it is in both of my hand' this effect leaves me with numbness and unable to P/U or hold onto any objects! I'm guaranteed to drop everything! I need something that will cause a slight sticking action! I tried athletic 'stick-um'! Too funny to explain how that played out! Does anyone have any ideas or suggestions? I'm becoming very irritable and quick tempered! I have AO which had so far given me 6 diseases. As of last week, it is now 7! I can not tolerate the meds so I grit my teeth (I'm not W/O pain) But the Poly N is beating me down! I'll try any suggestions, short of cutting off digits hand's...

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Hi Rick @juviijazz, The dropsies are the pits. I have idiopathic small fiber PN with numbness only symptoms which are mostly in my feet but do have a small amount in my hands. For me, I think dropping things is more my age and hand strength so I try to do hand exercises several times a day. Since you mentioned trying the 'stick-um' stuff, have you thought about the thin lightweight sticky gloves that pro football players wear? Amazon has a ton of them listed and I saw these fingerless ones on Walmart's site - https://www.walmart.com/ip/The-Grab-by-Swerve-Ball-Super-Grip-Football-Includes-2-Gloves/1867408778.

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I feel (or don’t feel) your hand issues. My PN started so strongly that I couldn’t feel tp I’d be holding in my hands and couldn’t hold silverware without dropping. In PT & OT I developed hand strength and a lot of exercises to help practice picking up anything from little pills to tennis balls. We had special tools for me at first, like fat pencils/pens to write with and wide handles for my eating utensils; no stems on glasses for me, or else! I find opportunities to practice hand agility. My favorite exercise is to take a bowl of Skittles and fish for a certain color and reward myself by eating them. (I do Jelly Beans too but not all of the colors are that enjoyable to me 😄)

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I'm at that early stage of dropping things when I still argue with myself: Did my PN make me drop that? Or would I have dropped it anyway, even if I were still, say, 58? Or 28? Or 8? The jury's still out on this one. Like others, though, on the chance my dropping things is because of my PN, I'm doing extra hand-strengthening exercises. For this purpose, I keep a pair of hand grips on the counter beside my Mr. Coffee as a reminder to give 'em 40 squeezes every time I go for a refill.

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Complete loss of taste and smell. Please comment. Thanks

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