1. < Lung Cancer

After Keytruda, what's next?

Posted by liz8716 @liz8716, Aug 28, 2019

@merpreb ...Hi, my name is Elizabeth. 31 yrs old.I was diagnosed with stage IV nsclc in April. I saw your story on here and it has given me hope. I'm currently on keytruda. Unfortunately my oncologist at this time says there is no cure and that keytruda can only be administered for 2 years. That she is only helping me live longer at this point because there is no cure. I did have taxol and carboplatin (4 rounds). My tumors have shrunk. But when I ask the dr "what next after 2 years of keytruda she says we'll wait and see. It's sort frustrating. I have to ask. What was your treatment?? Because the 5 year mark almost sounds impossible from what my dr states. Or if anyone else here knows of any new treatments.

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Merry, Alumni Mentor | @merpreb | Jul 27, 2020
In reply to @shortshot80 "COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR..." + (show)
@shortshot80

COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR NOT. I'M BAD WITH CANCER GROTHS COMING OUT ALL OVER MY BODY. THREE IN MY STOMACH, ONE IN MY RIGHT UNDER ARM, AND ONE ON THE RIGHT SIDE OF MY NECK RIGHT IN PUBLIC VIEW. THE ONE ON MY NECK HAS CAUSED ME TO HAVE A SORE THROAT AND ALSO INSIDE MY NOSE. I HAVE LOST POUNDS IN THE LAST WEEK AND DON'T FEEL GOOD. i CAN'T EVEN TALK ANY MORE JUST WHISPER. . SO IF YOU DON'T HEAR FROM ME YOU WILL KNOW WHAT HAS HAPPENED.. HAVE HOPED TO MAKE IT TO THE END OF AUGUST, BUT DON'T THINK SO. LOVE YOU ALL AND THANKS FOR ALL THE GREAT INFORMATIOON PASSED OUT IN THE LAST FOUR YEARS. NAND/SHORTSHOT.

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@shortshot80- Nancy, I wish that I could hold you and hug you. I wish you a wonderful and sensitive person to help make you comfortable and will help you ease you into your journey. You have been a wonderful friend, a writer friend, and a sympathetic ear to all of us who have become your Connect family. It has been an honor to know you and I will always remember you on your Dory going out to sea. My love to you Nancy!

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richcolleen | @richcolleen | Jul 26, 2020

🙏🏻 Prayers coming your way!

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shortshot80 | @shortshot80 | Jul 26, 2020
In reply to @richcolleen "No. Only two of the test were positive for RA. Another taught it was Soto gout...." + (show)
@richcolleen

No. Only two of the test were positive for RA. Another taught it was Soto gout. My primary Dr thinks it’s inflamed arthritis. Am agreeing with here. Yesterday met with oncologist and he decided it wasn’t soto gout. He put me on 10 mg prednisone daily.

Jump to this post

COLLEEN/ SHORTSHORT//I DON'T KNOW IF I WILL BE ABLE TO GET ON HERE ANY MORE OR NOT. I'M BAD WITH CANCER GROTHS COMING OUT ALL OVER MY BODY. THREE IN MY STOMACH, ONE IN MY RIGHT UNDER ARM, AND ONE ON THE RIGHT SIDE OF MY NECK RIGHT IN PUBLIC VIEW. THE ONE ON MY NECK HAS CAUSED ME TO HAVE A SORE THROAT AND ALSO INSIDE MY NOSE. I HAVE LOST POUNDS IN THE LAST WEEK AND DON'T FEEL GOOD. i CAN'T EVEN TALK ANY MORE JUST WHISPER. . SO IF YOU DON'T HEAR FROM ME YOU WILL KNOW WHAT HAS HAPPENED.. HAVE HOPED TO MAKE IT TO THE END OF AUGUST, BUT DON'T THINK SO. LOVE YOU ALL AND THANKS FOR ALL THE GREAT INFORMATIOON PASSED OUT IN THE LAST FOUR YEARS. NAND/SHORTSHOT.

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2 replies
Merry, Alumni Mentor | @merpreb | Jul 24, 2020
In reply to @meka "Gosh, I hope you hear from them soon, no need for pain. With you in thoughts,..." + (show)
@meka

Gosh, I hope you hear from them soon, no need for pain. With you in thoughts, hugs, etc. Stay in touch as you are able, Jill, akaMeka

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ah, ha- A first name! xxoo

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meka | @meka | Jul 23, 2020

Nancy, tried to reply earlier, but hope you get some pain relief asap, please know I will keep you in my heart and thoughts ❤️!!

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meka | @meka | Jul 22, 2020

Gosh, I hope you hear from them soon, no need for pain. With you in thoughts, hugs, etc. Stay in touch as you are able, Jill, akaMeka

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1 reply
Merry, Alumni Mentor | @merpreb | Jul 22, 2020
In reply to @shortshot80 "shortshot/nancy/ hello everyone: my cancer is growing fist size "flowerless" some., some on the inside some..." + (show)
@shortshot80

shortshot/nancy/ hello everyone: my cancer is growing fist size "flowerless" some., some on the inside some on the outside under my right arm at the top under my arm pit. one is growing on the outside right side of my neck. I have at least four in my
i saw my primary doc Monday, and he told me to call my oncologist and see if i could get in earlier than August 6. I calle on Monday afternoon and this is Wednesday and I still haven't heard anything from the scheduling department. i am not doing very good. (THINKING) too much.....There is not any more treatment,k so just doing mly time. Wanted everyone to know what was ;happening with me. I 'm, tired. . The compression fracture did not help any thing either. The cancer is in my bones. My right hip, leg and heel is mighty painful The fracture is in the "thorax part of mly bach, which effects my talking- speech of my throat. ....... Nancy

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Nancy- call his office and have him paged, or have your son drive you to ER for some pain relief. You shouldn't put up with this. Do what you have to to be comfortable. Xxoo

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richcolleen | @richcolleen | Jul 22, 2020

If your oncologist doesn’t answer your call after 24 hours I’d show up. No excuse for a call back.

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shortshot80 | @shortshot80 | Jul 22, 2020
In reply to @richcolleen "No. Only two of the test were positive for RA. Another taught it was Soto gout...." + (show)
@richcolleen

No. Only two of the test were positive for RA. Another taught it was Soto gout. My primary Dr thinks it’s inflamed arthritis. Am agreeing with here. Yesterday met with oncologist and he decided it wasn’t soto gout. He put me on 10 mg prednisone daily.

Jump to this post

shortshot/nancy/ hello everyone: my cancer is growing fist size "flowerless" some., some on the inside some on the outside under my right arm at the top under my arm pit. one is growing on the outside right side of my neck. I have at least four in my
i saw my primary doc Monday, and he told me to call my oncologist and see if i could get in earlier than August 6. I calle on Monday afternoon and this is Wednesday and I still haven't heard anything from the scheduling department. i am not doing very good. (THINKING) too much.....There is not any more treatment,k so just doing mly time. Wanted everyone to know what was ;happening with me. I 'm, tired. . The compression fracture did not help any thing either. The cancer is in my bones. My right hip, leg and heel is mighty painful The fracture is in the "thorax part of mly bach, which effects my talking- speech of my throat. ....... Nancy

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1 reply
richcolleen | @richcolleen | Jul 14, 2020

Yes twice with the 3 for 3 days, 2 for 3 days 1 for three days twice. Know one everyday. Only thing that kept the pain and swelling down. Know it causes other things but better than the pain.

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