Ketamine protocol

Go to Epilepsy.com, Epilepsy.org and ask that question to a Community in<br>Florida, etc.<br><br>You will receive answers from many.<br><br>Kay<br>

Thanks Kay, I certainly will

My neurologist has suggested I meet with someone who handles using ketamine for pain. From what I could understand he was talking about some sort of wafer used as the delivery of the ketamine. Anyone have any experience with this kind of treatment? @pat79

I have an excellent pain management doctor. Initially, I suffered with severe pain after a fall 45 feet and later (‘mint proud of this) 25 foot fall in Afghanistan military assignments - the 2nd fall , crushing my spine. This doctor noted some possibly accidental and inexperienced based malpractice in the vertebroplasty which I understand , but conditions worsened Now after 5 years from day one has treated me conservative as possible while listening to me and trusting I know my body and my pain better than he does but most of all he does not know everything. The worst doctors in the world are the ones who are not even open to the idea they don’t know everything, and then they don’t listen, and in the end are as useful as snake oil .. so the good Doctor Who listens but is careful tapering to not perfection, but increased quality of life and tolerable pain management levels , for me. He’s done this first with opiates and now reduced heavy duty opiates down to mild MS contin as needed which is now rarely need to do to primarily includes ketamine infusions every six months after the initial heavy dose round over ~2 weeks I cannot tell you enough how this is helpful. In between boosters each six months I also take ketamine nasal spray at home as needed. For breakthrough pain, that is exceptional, in fact I am sometimes able to to stop intense “runaway train pain “and not need the high dose opioid when taking nasal spray 100mg/ml ketamine early enough. I do not know what the wrap is. I just have experience with an initial infusion and secondary nasal spray w/ boosters for pain. In many ways, it is a double edged sword for anyone suffering long enough to reduce your quality of life down to a depressed state. it is a miracle drug for depression, clinical or pain related. Pain and depression feed off of each other as we know. This in my darkest times of depression, when even suicide is preferable to going on, the infusion with M literally five drops through an IV put me from the depths to the mountaintop streaming for other people to know of this. It will not be permanent, perhaps months for the depression, but who can be two for one.it’s been a miracle drug for me

I have severe neropathy after being hospitalized for nearly 2 months this year from sepsis. I wanted to know about ketamine also. I wil follow this thread and wish you there best, thanks for posting this.

I tried Ketamine nose drops without success.

I had 3 ketamine 2 hour infusion treatments and by the 3rd treatment I was experiencing nausea really bad , also had the feeling of dying for the two hours of the last treatment. I know everyone will react differently to ketamine treatments. I didn't receive any pain relief from my 3 treatments. I have tried several different medications with no relief. My periferal stems from agent orange exposure and I am as good as I will ever be, nerves damaged and will not show any improvement. Good luck on finding relief, how ever, from pills, physical therapy!

I use a small cube which could be considered a wafer. You put it under your tongue and it dissolves. I like it much better than the nasal spray. Works really good I am on it for severe depression.

I have neuropathy so bad that some days I can’t even walk. The ketamine doesn’t help and I haven’t found anything thing as of now that does except controlling my sugar levels.

There are four stages to ketamine therapy. They take you to the third level which is the hallucination phase. The fourth stage is the anesthesia stage; they do not take you to this stage ( because the rules change). I have experienced five sessions with short term ( an hour or so) pain relief, but it was only due to being so high that I had forgot about my pain levels. This is not an answer for pain management unless you are going to become one with the couch and have reserved the right to not function in the present as a productive human. That’s my experience. The setting in which you experience an infusion; 250 mg for me) will make a huge difference. My setting was a doctors office with a malfunctioning air system that overtook my auditory sense shovel all other inputs out. Didn’t work for me. In case you are considering, the space has to be sound proof with the proper music; not Ozzy…..