Just diagnosed with pancreatic NET stage 1
I’m a 64 year old woman, I’ve have colon issues for decades among other issues. They found my tumor on a CT scan, I don’t think I have any symptoms because of all my other issues in play. Anyway, I’m devastated! It’s on the tail portion of my pancreas, 1c in size, well sectioned, slow growing. I had biopsy done with scope to confirm cancer. My oncologist surgeon had 2 options, wait 6 months and repeat CT so we had a baseline and check for any changes or surgery to remove it, which the tail of pancreas is removed and also remove spleen, tube running (for temp drainage) out of my nose. 4 immunization shots followed by 2 more. So I opted for waiting the 6 months. I’m so confused and scared it’s going to move to another area. If anyone has had this same issue please message me back with your decision. It’s been a month since I found out and I’m a wreck! Thanks
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Feeling better. Have been off the chemo since February, it took a while. Symptoms got worse after the treatments ended, couldn’t eat, very weak and neuropathy in hands, feet and legs.
Strength is coming back and I can eat again the neuropathy is still a problem but it is improving slowly.
The corn starch was recommended in the hospital, I think they were surprised too at how well it worked, but everyone is different. It must be something new.
Thank you. My sugars are actually back to or very close to range since I woke up from surgery. I know protein drinks that I used to drink raise my sugars now and make my stomach upset.
Hello @lastround,
I found your suggestion interesting about adding cornstarch to pudding in order keep the glucose numbers low. I had not heard this before. Is this something that your doctor mentioned?
How are you feeling these days?
Sausage egg McMuffin’s and chocolate pudding worked for me. If you are having issues with your glucose [suger] mix cornstarch into the pudding. It keeps your numbers from spiking and is tasteless.
Fantastic news Michelle! Take it slow eating and walk as much as you can tolerate within the doctors instructions. It helps the healing and general pain from surgery. Keep us all updated.
I'm over the moon for you ❤️ best of luck for a full recovery 🙏
I am having to figure out what I want to eat. Anything sugary or salty does not appeal to me. Right now my comfort zone is an egg and piece of marble rye toast or chicken broth with saltines or marble rye toast
Thank you. 💜💜
@michellesimpson10 - I started on clear broths, slowly transitioned to soft mashed bananas, soft mashed potatoes, soft scrambled egg. Everything bland :(. Take it slow and easy!!💜
I’m glad you are doing better. It’s so fortunate that your NET was found early and able to be removed. 💜💜