Just diagnosed with pancreatic NET stage 1
I’m a 64 year old woman, I’ve have colon issues for decades among other issues. They found my tumor on a CT scan, I don’t think I have any symptoms because of all my other issues in play. Anyway, I’m devastated! It’s on the tail portion of my pancreas, 1c in size, well sectioned, slow growing. I had biopsy done with scope to confirm cancer. My oncologist surgeon had 2 options, wait 6 months and repeat CT so we had a baseline and check for any changes or surgery to remove it, which the tail of pancreas is removed and also remove spleen, tube running (for temp drainage) out of my nose. 4 immunization shots followed by 2 more. So I opted for waiting the 6 months. I’m so confused and scared it’s going to move to another area. If anyone has had this same issue please message me back with your decision. It’s been a month since I found out and I’m a wreck! Thanks
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Exactly! Being alive is what matters!
I am also on Creon, b/c most of my pancreas is gone and no enzymes to help digestion...
Wow! That’s crazy no symptoms either. I don’t have diabetes but my Cancer Antigen test came back high and so did my A1C. My amalyse was really low, so i’m trying to cut the sugars back now and take enzymes to help. This is all just crazy to me. Im happy your back to normal now, that seems like a lot and a long process. But your alive so that’s all that matter 🙏🏼☺️
Thank you so much! 🥰
Good luck with biopsy! Hope it is benign!!💜💜
No symptoms, at least not ones that can make me think about it. I was 170 lbs, diagnosed with diabetes, but no meds ( diet and excersise). Lost weight (150lbs) but my blood glucose and A1C did not change. Had a stroke and during a chest CT scan the mass showed. Now - 3 months after surgery (pNET debulking, gall bladder and spleen removed, part of my stomach resected and full hysterectomy) my 1AC was normal and blood glucose in norm.
Thank you! I’m scheduled for the 14th of June! Did you have any symptoms?
@keisham808 - I had a large mass in the pancreas, that was discovered on a CT scan and I had a biopsy. It showed a grade 2 pNET, but after surgery biopsy showed metastases in the liver, so ' I was upgraded to stage 4).
Please - have a biopsy!!
@keisham808
Yes, I have had cysts on the pancreas. I first had a EUS which is an ultrasound done through an endoscopy. Is this the way your biopsy is being done? I was nervous about the finding because of my history of carcinoid cancer in the duodenal bulb. A biopsy was not done, however, because it looked like a cyst, not a cancerous lesion.
I've had follow-up MRIs for several years and the size and the number of cysts has remained the same. So, I feel more comfortable now with the presence of these cysts.
We have other discussions on Connect regarding pancreatic cysts. You might find them interesting and helpful as you wait. Here are the links to those discussions:
--Can Very Small Pancreatic Cysts Have Symptoms
https://connect.mayoclinic.org/discussion/can-very-small-pancreatic-cysts-have-symptoms/
--Pancreatic Cysts
https://connect.mayoclinic.org/discussion/pancreatic-cyst/
--MRI-MRCP Cyst Newbie
https://connect.mayoclinic.org/discussion/mri-mrcp-cyst-newbie/?pg=4#comment-767495
I am wondering, were you having symptoms that led to the scan where the cyst was discovered?
I will have my husband go get some tomorrow and try it. Thank you
No instant! They have ton of sugar ( even the ones that a low sugar still have some)! If you do the O/N it is not much work than instant!