Just diagnosed with pancreatic NET stage 1
I’m a 64 year old woman, I’ve have colon issues for decades among other issues. They found my tumor on a CT scan, I don’t think I have any symptoms because of all my other issues in play. Anyway, I’m devastated! It’s on the tail portion of my pancreas, 1c in size, well sectioned, slow growing. I had biopsy done with scope to confirm cancer. My oncologist surgeon had 2 options, wait 6 months and repeat CT so we had a baseline and check for any changes or surgery to remove it, which the tail of pancreas is removed and also remove spleen, tube running (for temp drainage) out of my nose. 4 immunization shots followed by 2 more. So I opted for waiting the 6 months. I’m so confused and scared it’s going to move to another area. If anyone has had this same issue please message me back with your decision. It’s been a month since I found out and I’m a wreck! Thanks
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
I am scheduled for surgery May 26th. With the same size tumor as you have. I wish you a good result and hope you recover quickly. Please update us on your recovery.
Good luck and keep us informed on your progress after your surgery as your able. Ditto on the walking as soon as possible, even day 1 is possible to start walking, it will make your feel so much each day your able on the road to recovery.
@michellesimpson10 -good luck on your surgery!! And remember - get up and try to walk as soon as you can! ❌⭕💜💜💜
Thank you. May 8 at 8 am. 😎
Wishing you all the best, @michellesimpson10! What time is your surgery scheduled?
Thank you. I will post when I’m able to. I’m just ready to have the surgery and find out what the pathology report shows so I know what my next steps are.
Have an awesome day
I'll be thinking about you tomorrow, @michellesimpson10. I hope your surgery goes well tomorrow and that your recovery is uneventful.
Will you post again and let me know how you are progressing?
We are here to support you, pray for you and send love. It is very scary. I’m newly diagnosed with 2 cm NET in tail of pancreas. I’m having surgery in the morning to remove tail and spleen. From what I have read from other people on here, it is best to find a NET specialist and do what is best for you.
I’ll say prayers for you and follow your journey.
I’m glad he is doing well. Big hugs to you both. It’s very scary. I’m having surgery in the morning for a NET 2 cm in the tail of my pancreas and spleen removal.
A gentle reminder about the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/#ch-tab-navigation
In particular I'd like to point out guidelines number 2.
2. Remain respectful at all times.
– Exercise tolerance and respect toward other participants whose views may differ from your own.
– Disagreements are fine, but mutual respect is a must.
– Personal attacks against members or health care providers are not acceptable. Such posts will be removed.
There are many terms that people and medical professionals use when discussing stage 4 cancer such as advanced cancer, metastatic, terminal, non-curable, etc.
With today’s treatment advancements, more and more patients live many quality years with metastatic cancer.
That said, I recognize that words matter. In this supportive community, I ask that each member respectfully allow the other to define their cancer in terms that speak their reality.