Just diagnosed with DCIS 5.5 weeks postpartum
Hi all,
I am 42 years old and just found out I have DCIS. I know nothing yet, and I meet with a breast surgeon and oncologist next week.
I just had a baby boy 5.5 weeks ago and am breastfeeding.
I’m so scared and depressed and questioning how this happened. I’m not even sure what I’m asking about. I suppose I’m wondering what questions I should ask my breast surgeon and oncologist. What do I need to know?
I’ve already fallen down the rabbit hole of treatment options and I’m terrified of radiation. I’m also terrified of a mastectomy. And I am so sad that I’ll likely have to stop breastfeeding.
Any advice is appreciated.
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Checking in with you here. I'm extremely sorry to hear of your difficult situation. There is a lot going on. I'll try and sort it out a bit and hope that helps. Just my thoughts--so see what appeals to you--this isn't gospel!
Breast cancer diagnosis can be a shock, even more so in your circumstances. Fortunately this is a very early diagnosis. I would directly ask the oncologist if you can have some weeks before treatment. It will take a while to set up in any case. Also, get as much info as you can about what would counter indicate breast feeding. I also think a lactation specialist might help. Also, if you do need to wean, ask the pediatrician as to how to do it in a way that isn't too jarring to you or the baby.
If you are at a cancer center, a social worker in oncology might help you sort through the issues. As a new mom, you are vulnerable, with hormones still adjusting. Do you feel the oncologist fully understands your personal situation? Can you OB/GYN offer any advice?
I can relate as I was told to wean my daughter at 3 days because I needed gall bladder surgery. I was able to work it out, but only because my PCP was supportive of the breast feeding.
I certainly understand your fears of treatment, but here again you don't have to rush. Meet with the oncologist, find out what the suggested treatment plan is, and then evaluate. Do you have a partner, friend, or family member you can depend on? Try to bring someone to all medical appointments, and have them take notes.
I hope you'll get some good advice here. Do check in when you feel like it. Will be thinking of you.
Thank you for responding. I haven’t had a meeting yet with with surgeon or oncologist. That’s next week. I’m so depressed and scared. I did find out the cancer is grade 3 and er/pr+…I think? So hormone treatment afterwards seems likely. And if that’s the case I can’t breastfeed. So I’m wondering if I continue breastfeeding for the next couple of weeks and then begin to wean.
I just don’t even know where to begin or how to cope mentally. So thanks for offering help. I do have a wonderful husband who will be at appointments with me.
I'm so glad to hear you have support. I was diagnosed about three years ago with a rare breast cancer. The first two months or so felt very chaotic and scary. It has gotten easier to understand and handle as time has passed. I hope this is true for you too. I found te shock to be the worst.
Hi.. I was diagnosed with DCIS in January. It is extremely scary to hear those words: breast cancer. When you meet with your surgeon.. bring all your questions and someone with you to also hear all the information., it is overwhelming. But., your surgeon will answer all your questions and give you books to help. My surgeon was great about answering questions, which really helped. Recovery after surgery went well. I was back to doing my normal activities in a couple weeks. I had 3 weeks of radiation and that went very well. Everyone at the center was so nice and it really wasn’t bad at all. My skin got a little irritated .. they gave me cream and aloe which really helped. Hang in there and be sure to ask all your questions to your surgeon and oncologist. Take good care!
I can tell you in almost all of the hundreds of the women I have been a patient advocate for locally, this is the scariest time. You have a diagnosis and nothing else, except what you can find on line.
I know this is really hard, I am a 20 year survivor. Try to breathe, during times of extreme stress I like to take a deep breath and blow it out, a few of these breaths can induce focus and relax your diaphragm. Then I can remind myself that now is not my worry time, I save that for the 30 minutes that I set aside for it. This allows me to hack my brain and say I can only worry during that 30 minutes, allowing myself to refocus on what I was doing.
Once you have met with your doctor, they will advise you on when to think about weaning your baby, you have time! You can enjoy your new baby and let the breast cancer sit on the back burner until you see the doctor. DCIS is a kind of encapsulated pre cancer so it isn’t growing bigger by the hour. This doesn’t mean you shouldn’t take it seriously, but you can take that panic feeling out of it.
Do you have ways to help you keep that stress down so you can cherish this time with your new baby?
Hi! @natsue1221 :
First of all, please allow me to congratulate you on the new precious baby! We are grateful to know that you have a supportive partner to cherish your beautiful baby together and take care of each other through it all.
Life truly throws curve balls at us from time to time, doesn't it?!! I am so sorry for what you've been through lately and my prayers go out for you and your lovely baby upon reading this post! Pray for peace of mind, wisdom and guidance from above through this rough patch of life. Our thoughts and prayers shall be with you all the way, for this is how we helped one of my friends and a member of my church fight the disease of cancer during her first pregnancy. We are so grateful that her then "unborn baby" is now a healthy and bright 4 years old handsome boy, and the mother has been cancer-free since her postpartum surgery to get rid of her cancerous cells by working with her care team step by step, and seeking peaceful minds and guidance through prayers! Sorry for my lengthy note, but I share this true life story to plead with you to work with your care team step by step patiently with hope, and you'll get through this fine. I know it is very hard to wait, but please allow your care team to investigate further to come up with the best adequate treatment plan for you. In the meantime, please cherish your new born baby with your loved ones every moment of the day to reduce the worrying thoughts from your mind.
Best wishes to you and your lovely family on the journey ahead with better health and a bright future to come!
Please read The Smart Women's Guide to Breast Cancer by Dr. Jenn Simmons. It will alleviate a lot of your concerns and give you some great recommendations on how to navigate your journey.