1. < Neuropathy

Just Diagnosed with Small Fiber Neuropathy

Posted by boo55 @boo55, Feb 1, 2019

Hi . I am a bit scared here. Had positive skin biopsy for small fiber. What tests will the Neuro ask for to find causation? Was diagnosed prediabetic in Fall. My Dad had similar issues and eventually lost a toe. Always felt he was walking " on fire ". My feet have similar issues. This is just one big Ick. Boo

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rebe | @rebe | Oct 21, 2022
In reply to @rwinney "Hi @albiet, I do. I loosely follow the Protocol that John uses and have for 6..." + (show)
@rwinney

Hi @albiet, I do. I loosely follow the Protocol that John uses and have for 6 months. It's no obvious game changer for me however, I do believe it's providing benefit. My neurologist recommended R Alpha Lipoic Acid and Acetyl L Carnatine and B12, as I was deficient (SFPN cause). I took magnesium already to help with constipation from opiods and CoQ10 to help with migraine. I researched each element of the Protocol to better understand each pills purpose. It all made sense and nothing seemed harmful overall so, I jumped on board.

The reason I say I follow it loosely is because: 1. I don't do liquids so, I substitute pills
2. have dropped the yeast pill bc I don't like it and am prone to high yeast

I also try and take liquid turmeric (only liquid I will do) daily.

Good luck in your exploration.
Rachel

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Rachel, on a post somewhere in this dialogue, you mentioned your experience with R-Alpha Lipoic Acid and the regimen you have found that best suits you. I ordered the R-Alpha Lipoic Acid 300 mg and thought I might take just one capsule/day for several weeks. Do you take it morning or night and also with or without food? Also I just receive liquid B12 Methylcobalamin & adenosylcobalamin. This is all new to me .. have you heard people mention with or without food etc? Thanks for sharing .. fresh diagnosis and a lot to wade through.

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Oct 22, 2022
In reply to @rebe "Rachel, on a post somewhere in this dialogue, you mentioned your experience with R-Alpha Lipoic Acid..." + (show)
@rebe

Rachel, on a post somewhere in this dialogue, you mentioned your experience with R-Alpha Lipoic Acid and the regimen you have found that best suits you. I ordered the R-Alpha Lipoic Acid 300 mg and thought I might take just one capsule/day for several weeks. Do you take it morning or night and also with or without food? Also I just receive liquid B12 Methylcobalamin & adenosylcobalamin. This is all new to me .. have you heard people mention with or without food etc? Thanks for sharing .. fresh diagnosis and a lot to wade through.

Jump to this post

HI @rebe, welcome back to Connect. Thanks for reaching out with your questions about my experience with R-Alpha Lipoic Acid. I noticed you haven't posted in a while, I'm sorry for your recent diagnosis of small fiber neuropathy. Did you have a skin punch biopsy to confirm your diagnosis?

My neurologist recommended I begin taking R-Alpha Lipoic Acid and Acetyl L Carnitine for neuropathy. Although I no longer take supplements, I recall him prescribing the dosage. Have you spoke to your neurologist regarding supplementation and the best practices?

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myfeetareonfire | @myfeetareonfire | Jun 25, 2023

Has anyone had the Nerve Block done for peripheral neuropathy? I am having it done next month as the RX and other treatments haven't been successful. What should I expect? Doctor said they will do an injection on the inside of each leg below the calf. I hope this works cause I have no intent to do the stimulation implant. Thanks for your time.

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1 reply
moni130 | @moni130 | Jul 4, 2023
In reply to @myfeetareonfire "Has anyone had the Nerve Block done for peripheral neuropathy? I am having it done next..." + (show)
@myfeetareonfire

Has anyone had the Nerve Block done for peripheral neuropathy? I am having it done next month as the RX and other treatments haven't been successful. What should I expect? Doctor said they will do an injection on the inside of each leg below the calf. I hope this works cause I have no intent to do the stimulation implant. Thanks for your time.

Jump to this post

I was just dx with sfn. I have it from head to toe and have had it for about 2 years. Did your pain Dr. recommend injections or your neurologist? I'm interested to know if they work. Thanks.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Jul 4, 2023
In reply to @moni130 "I was just dx with sfn. I have it from head to toe and have had..." + (show)
@moni130

I was just dx with sfn. I have it from head to toe and have had it for about 2 years. Did your pain Dr. recommend injections or your neurologist? I'm interested to know if they work. Thanks.

Jump to this post

Hello @moni130, Welcome to Connect. While you are waiting for reply to your question from @myfeetareonfire, I thought I would ask what treatment you have been on since you were diagnosed 2 years ago and if it is helping or not?

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