Is trying to get an appointment worth it?

Posted by winston137 @winston137, 2 days ago

Just looking for any suggestions. Ive had this ongoing infection for three years now, main symptoms being Rib pain, Headaches, Painful lymph nodes, and overall flu like feeling and muscle pain. I tested positive for mycoplasma pneumoniae and have had some vitamins or things similar low over the years other than that every test has come back clear. Ive been put on antibiotics many different times and they have worked almost every time but because of that I finish the round and symptoms return. I applied for an appointment 2/3 years ago and was denied because I had not seen an rheumatologist yet but was then still pediatric and couldn't find one to see me. three years later and constant cycle of antibiotics and feeling better then it coming back and getting worse and worse. My pcp thinks mayo is the way to go but im worried about getting the same response. happy to answer any questions or further explain symptoms if anyone has any ideas.

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Laurie, Volunteer Mentor | @roch | 1 day ago

@winston137

I think it is definitely worth trying to get an appointment at Mayo.

Would your primary be willing to initiate a referral?

For US residents, you can start your appointment request at http://mayocl.in/1mtmR63.
Your request will be reviewed and a time will be set up to discuss with an appointment coordinator to assist you with the process.

What Mayo location were you thinking about going to?

Ann Shrader | @annshrader | 1 day ago

Unless you try, you won't know.
I would suggest contacting your PCP and see if you can get a referral to Mayo. Get some direction from the PCP as to what department you want to start with. Organize your medical records, note where any and all care is provided. It does not mean you have to have copies of everything. Records can be securely sent over the internet.
If you can't get a referral, you can self-refer.

The constant cycling through antibiotics may be problematic long term.