Is there a particular diet to have when starting Lanreotide injection?

@swede79: I am assuming you have been diagnosed with Neuroendocrine tumor (carcinoid) cancer. Lanreotide 120 mg injections every 28 days is the standard first treatment to control diarrhea, flushing, carcinoid syndrome and I believe it also controls my tumors from further metastases and tumor progression. This is a very good treatment for all NET patients. Many patients have no side effects, other patients have various complaints but the most frequent one is fatigue. There are diets of foods to avoid listed online (Carcinoid.org & Lancets.org) and much advice available when you search this Mayo Connect site.
Since you are starting Lanreotide tomorrow I will share my personal diet advice: Drink lots of water tomorrow and eat very small nutritious bland meals (no spicy, fried, fatty foods for they can cause elimination problems - either constipation or diarrhea). You will probably feel very tired and if possible take a nap. You may have a headache and feel fluish.
Before bedtime take stool softeners if you tend to be constipated. This med can cause very hard stools in some people. Watching your diet, small amount of soft bland foods at one time, and drinking plenty of water will help prevent any intestinal blockage causing complications and you will feel better overall.
I have taken this injection for over 3 yrs and had some discomfort at the beginning, but I toughed it out and can tell you I have minimal side effects after the injection now. I believe this drug protects NET patients from far worse physical discomfort/tumor growth than the discomfort at the treatment beginning. I urge you to take this injection (in your upper hip) telling yourself that your body needs this drug treatment and mentally have a positive attitude and outlook. I believe this positivity is very beneficial in your treatment of NETS.
Our NET cancer tends to progress very slowly and if you have progression there are many treatments that can offer tumor stability. Surgery is sometimes an option.
I would urge you to find NET Specialist Medical Oncologist at a Cancer Center to consult about your medical condition and what further scans and treatments that will be beneficial to your best outcome. You need this advice NOW even if you have to travel to get it. However, a zoom consultation may be an option if you are in a rural area.
Mayo Connect will be a great source of information and guidance. This is a shock to be told you have cancer, but do some research, ask for help, and you will find your way to accept this diagnoses. Think positive, make decision daily to smile through the tough days and know that your NET friends are pulling for you. We care!
You can do this!
You can reach me @dbamos1945 if you have questions. Bette

I’m living with net as well, pancreas which has metastasized to my liver. Discovered about 5years ago, I get Sandostatin injections every 28 days and I’m taking Evrolimus orally daily. I’ve had radiation therapy at U of M and a different kind of chemo pill with no results. The Evrolimus seems to have me stabilized so we’re staying on it for now. My nets are inoperable, up to 2” in diameter on my pancreas and my liver is 75% encased with tumors. I’m often tired but I’m on several other meds as well that cause drowsiness. Diarrhea is my worst symptom, I take Loperamide 3 per day and Creon at every meal, but unannounced bowel movements still make me nervous when leaving the house. Life changing for sure if you want to be active away from home. Any suggestions would be appreciated, glad to still be active at 73.

https://connect.mayoclinic.org/discussion/is-there-a-particular-diet-to-have-when-beginning-lanreotide-injection/Reading what others have said confirms that as NET patients we are all different. I was diagnosed a little over 2years ago with lung metastasized to liver and was on Lanreotide for 8 months. Unfortunately it did not stop the growth of my liver tumor, so I have had other treatments since. The important diet advice I have is NO bacon, tomato based items or spicy foods! The most important suggestion I have is to be with a NET specialist oncologist. Mine has a dietitian who assisted with diet suggestions and even sent a cookbook with good recipes to try within dietary guidelines. Keep in mind that NETS is a marathon not a sprint.

@swede79: I thought about you today, hoping that your oncologist meeting was informative and your 1st Lanreotide injection has been uneventful. Please let us know how you are doing. We care!

Hi @swede79, I hope you saw the helpful posts from @dbamos1945 @nana120 and @catalinaharley752.

Swede, how are you doing? Did you find foods that work for you on treatment? Anything you have to avoid?

Following this I remembered a couple more things I was told to avoid. (1) cruciferous vegetables, (2 ) peel all fruits (3) salmon. All vegetables should be well cooked & this was difficult when eating out as most restaurants serve vegetables al dente. Some people had to avoid avocados, but I didn’t have a problem with them. Mostly it is trial & error as you find what causes you issues.