Is Anyone @TheMayoClinic studying ARACHNOIDITIS?

Posted by chronicbackpain25 @chronicbackpain25, 7 hours ago

Searching for a Dr. (not Dr. Tennant) who's Currently, ACTIVELY studying Arachnoiditis. Must be someone at Mayo or other reputable institution. Not interested in FB like group chats. Want progress, not perfection. I Have been suffering for 3 years without appropriate or any form of meaningful progress regarding chronic, life changing debilitating pain. Thank you in advance.

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John, Volunteer Mentor | @johnbishop | 5 hours ago

Welcome @chronicbackpain25, Sorry you haven't found much progress in your treatments for Arachnoiditis. I don't think you are alone in your search. I did a quick search of Connect and found others asking about trying to find a specialist and thought it might be helpful to learn what has been shared. Here's a link to the discussions and member comments - https://connect.mayoclinic.org/search/.

I did find a Feb 2025 research paper but not sure how helpful it would be.
-- A Global Bibliometric Study of Spinal Arachnoiditis: Research Trends and Future Directions:
https://www.sciencedirect.com/science/article/pii/S1878875024020370

rivermaya34 | @rivermaya34 | 1 hour ago

@chronicbackpain25 In my early days on here, I conversed with @milesdaviskindofblue about this. You may want to dm him, he was both helpful and encouraging, plus struggling with this very thing. He may have more insight that's helpful to you. Best of luck to you, friend.