Mine was three months also,tapering down.im on my third course of it,I went 5 weeks off of it this last time,then i started having flare ups again..my doctor wanted to order something that was going to cost me over $400.00 for one month,and I couldn’t afford it.
D
Have you priced it on GoodRX and SingleCare? You’d be surprised what a difference it can make. I take a drug twice a week that 2 mos worth is over $300. But the good RX price at a grocery store pharmacy is $67.
Mine was three months also,tapering down.im on my third course of it,I went 5 weeks off of it this last time,then i started having flare ups again..my doctor wanted to order something that was going to cost me over $400.00 for one month,and I couldn’t afford it.
D
Oh sorry. A lot of research has been conducted about microscopic colitis - both lymphocytic and collagenous. A key learning revealed that many cases were associated with specific medications and over time the research refined these to be NSAIDs (like Ibuprofen ), SSRIs (specific antidepressants such as Sertraline), PPIs (such as Nexium), and less common drugs such as Statins.
I stopped all those when I was diagnosed. I have since reintroduced SSRI because alternative antidepressants just weren’t effective . And luckily it didn’t cause a relapse. I switched to Pepcid for GERD and know I cannot reintroduce ibuprofen without relapse.
Oh sorry. A lot of research has been conducted about microscopic colitis - both lymphocytic and collagenous. A key learning revealed that many cases were associated with specific medications and over time the research refined these to be NSAIDs (like Ibuprofen ), SSRIs (specific antidepressants such as Sertraline), PPIs (such as Nexium), and less common drugs such as Statins.
I stopped all those when I was diagnosed. I have since reintroduced SSRI because alternative antidepressants just weren’t effective . And luckily it didn’t cause a relapse. I switched to Pepcid for GERD and know I cannot reintroduce ibuprofen without relapse.
Sadly yes but low dose (10mg generic crestor). Until I added Magnesium L-Threonate supplement, the statin left me frustratingly constipated and even chewing benefiber gummies every night wasn’t enough for a daily routine. That’s solved now, So I’ve added antidepressant and statin back to my regiment without relapsing the colitis.
I have collagenous colitis and can't seem to taper off the Budesonide. On my third attempt now, with a taper scheduled to start at the end of this month. My dental hygienist has lymphocytic colitis and has discovered that sugar alcohols cause her to flare. These are sweeteners like sorbitol, erythritol, etc. so if you are still ingesting those you may want to stop.
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I have the sister version of microscopic colitis - collagenous colitis -
When you say you take Budesonide on and off, how long was your first course of it? Mine was 3 months, stepping down from 9mg a day to none.
Mine was three months also,tapering down.im on my third course of it,I went 5 weeks off of it this last time,then i started having flare ups again..my doctor wanted to order something that was going to cost me over $400.00 for one month,and I couldn’t afford it.
D
Have you priced it on GoodRX and SingleCare? You’d be surprised what a difference it can make. I take a drug twice a week that 2 mos worth is over $300. But the good RX price at a grocery store pharmacy is $67.
Have you tried stopping the known medication triggers?
You would have to explain that.
Oh sorry. A lot of research has been conducted about microscopic colitis - both lymphocytic and collagenous. A key learning revealed that many cases were associated with specific medications and over time the research refined these to be NSAIDs (like Ibuprofen ), SSRIs (specific antidepressants such as Sertraline), PPIs (such as Nexium), and less common drugs such as Statins.
I stopped all those when I was diagnosed. I have since reintroduced SSRI because alternative antidepressants just weren’t effective . And luckily it didn’t cause a relapse. I switched to Pepcid for GERD and know I cannot reintroduce ibuprofen without relapse.
Hope that’s helpful.
Were you taking a statin? I do take one of those.
Sadly yes but low dose (10mg generic crestor). Until I added Magnesium L-Threonate supplement, the statin left me frustratingly constipated and even chewing benefiber gummies every night wasn’t enough for a daily routine. That’s solved now, So I’ve added antidepressant and statin back to my regiment without relapsing the colitis.
I have collagenous colitis and can't seem to taper off the Budesonide. On my third attempt now, with a taper scheduled to start at the end of this month. My dental hygienist has lymphocytic colitis and has discovered that sugar alcohols cause her to flare. These are sweeteners like sorbitol, erythritol, etc. so if you are still ingesting those you may want to stop.
Yea they’re nasty stuff. Monk fruit is the exception I think.
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