Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Posted by francinemoran @francinemoran, Jan 4, 2023

I’ve just found out i have invasive lobular carcinoma. Stage 2. I have an appointment with a surgeon today and an oncologist next week. Not sure how all this works makes me nervous. Any help would be appreciated

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momc | @momc | Jan 5, 2023

I was diagnosed in February 2022 with what was initially thought to be a 2.5 cm ILC. Had multiple tests that showed it to be somewhat larger. I opted for single mastectomy after consulting surgeon and radiation oncologist. Unfortunately, the tumor was a whopping 7.5 cm after pathology and, as I am small breasted, the surgeon was not able to get clear margins. Also had 3 of 4 lymph nodes involved. Following 33 sessions of radiation, I developed pneumonitis and am now just coming off of the steroids. I have learned that taking care of oneself should be a priority for anyone dealing with cancer. The mind body connection is real for me and at the tender age of 83 I have embraced it. This site has been a revelation and the women are kind and caring.

gbnana | @gbnana | Jan 5, 2023

Wishing you a good appt today.
My invasive breast cancer was 1 year ago. I did have a mastectomy but no chemo or radiation. Have just finished a lot of scans and tests and all is still clear 1 year later.
Staying positive is hard but we all do our best!