Invasive lobular cancer and treatment choices

I am having radiation now after lumpectomy, for ILC . Oncolgist said I didn’t need radiation but would need a hormone blocker. I decided to see
the radiation doctor and he told me since I had 2 foci in a quadrant he thinks I should have radiation. He told me a lot of women don’t stay on the hormone blockers because of side effects.
I don’t want to take either pill since I have bad neuropathy and I’ve been on prednisone for 2 1/2 years for PMR, also osteoporosis from prednisone.
The thought of having more pain in my body would be unbearable, but if you don’t have issues, it might be worth a try.
Still not sure f I’m doing the right thing, or if I will try the pill. It’s a hard decision. I’m 75 years old with lots of other issues.
I am stage 1 grade 2 with a low recurrence score of 11
Any suggestions?

But you can’t have an extraction right after you take reclast

I’m going to give it a try. I’m hoping the side effects are not horrendous! Invasive lobular is so sneaky! 😡

I've taken Anastrozole for almost two years. All that I've experienced have been occasional hot flashes and some hair thinning. I'm glad that I've taken it. I was also taking Ibrance which caused no problems other than hot flashes and a little more hair thinning.

After last occurrence of breast cancer, my oncologist sent a sample of cancer tissue to a foundation for further research. I have 11 mutations which puts me in another category than Estrogen Positive now. Xeloda is the chemo pill targeted for tumors with over 10 mutations. The 3 spots on my chest wall disappeared within 4 to 6 months.

I was on tamoxifen. There was a very small lump in my armpit which just looked like a skin tag. They were surprised to find that it was breast cancer after a biopsy. They felt that it was left over from mastectomy. I then went on Arimidex until 2013. In 2015 a tiny lump showed up a few inches from Armpit. My reoccurrences are all attached to my skin. Yes, lobular is very sneaky.

I noticed two 6 6 were on this message. It was 6 years ago - I am 55.

Did you catch your cancer in its early stages? What was your grade and pathology score? What was your treatments besides a blocker? I’m concerned this cancer is sneaky. My right breast is a ok now but the reoccurrence rate in traveling to other parts freaks me out. Thanks

I was also diagnosed with ILC 6 6 years ago on my left breast and opted to do a mastectomy with reconstruction. I tried tamoxifen 3 different times but I felt very dark and gloomy with terrible joint and muscle pain. After talking with my doctor who told me my risk would go from 7% to 4% by taking tamoxifen, I decided to not take it anymore. However, in January 2024 I had my annual mammogram which detected a small spot on my right side. After the biopsy it was confirmed that I once again have ILC in my right breast - stage 1 and the MRI does not show that it has spread and the type of ILC is similar but not the same as the first ILC I had so it did not spread from my left breast. Chemo and radiation are unlikely but we will know for sure once the surgery is done. I am going to remove my implant on the left breast, have a mastectomy on the right breast (I just can’t have anymore scares with the mammograms) and have a DIEP flap to reconstruct both sides. I wanted this surgery the first go around but the plastic surgeon said I didn’t have enough fat (which I thought I had more than enough) but thanks to age and menopause I now have enough to reconstruct both sides. I didn’t realize all these years I was feeding and growing my new belly boobies. I will once again try the hormone medication and hopefully because I’m in menopause the different drugs will not affect me as much. Good luck to you in your journey. I’m sorry you are having to go through this!!!!

What is the name of the chemo pill you took?