Invasive lobular cancer and treatment choices

i was diagnosed with same , but lymph nodes were cancerous , quite a few, so had mastectomy and radiation , also chemo . chemo first , mastectomy and then 3 weeks radiation . now on esteogen blockers , as in my 60 , i take exemestane . all going well . little side effects . got my twin to get checked she had same but in situ , she had lump removed , no radiation no further treatment . so it really depends on your stage . i was glad to have mastectomy as large tumour . you get used to it very quickly , or i did . you might have other breast removed at later date .
but i think you need MRI to pick up any further bad cells . your in good position as got it early. all the best . keryn

Yes, I do daily walking and lots of stretching. The stiffness is increasing, but still tolerable.
I am more concerned with taking CDK 4/6 inhibitors, such as palbociclib, abemaciclib, and ribociclib. They suggest adding that to anastrozole to mitigate recurrance.
Does anyone have experience with any of these drugs? I would really appreciate hearing about your experience and rationale for taking.

I did have some joint stiffness from anastrazole but walking daily for about 20-30 minutes seem to really make a huge difference in the side effects. I made it 10 years on this drug. There is some things that I didn’t love and some I still don’t like, but I am still here.
Are you able to get up and walk a bit?

I had a DMX and with stage 4 metastatic BC, I'm on Verzenio & Tamoxifen. I'm also getting the Signaterra test every 4 months to monitor cellular activity.

I am a very active 72 and have been in very good health (other than osteoporosis) until the diagnose of stage III ICL end of last year. I have been taking Anastrozole for the last 10 months and am having increased joint stillness. I had a lumpectomy and am going through radiation therapy. CDK 4/5 inhibitors are on the table. I am not sure of the side effects and benefits for ILC cases like me.
Can you say how old you are are what was your diagnosis?

My diagnosis was similar to yours with ILC: 74, Stage 1, Grade 2, Oncology score 6. I definitely wanted radiation but will not be taking any AI therapy. I understand that AI can only lower your chance of distant recurrence by half your score, so 3% instead of 6%. I feel that this is not beneficial enough to deal with all the side effects. You have to decide what is best for you.

What precautions did you take?

I have I’ll wither 2 dominion one quadrant. I had a lumpectomy and opted for radiation after doctor told me some people won’t stay on the pill long. I have so many other issue with pain that I really don’t want toke the hormone blocker. It’s a hard choice. But at least I Dodi 2 out of 3 things. I hope that’s enough. Good luck to you.

Fosamax made me so sick. Projectile vomiting for hours, i was so mad at myself for taking it. I'm a tiny 66 year old with very bad bones. I carry a disk my doctor made of my horrible neck. I have osteoarthritis, breast cancer ILC, Gone flat and just had a hysterectomy, I also have EPI, I'm sick of pain, I'm using yam cream, soursop tea and DIM. I've removed all plastic out of my kitchen and only wear cotton. Antique if at all possible. I hope this helps,
I'm at peace with my decision.
No more doctors. Best of luck

With ILC, all options are on the table. It's too sneaky and invasive not to take all precautions. I'm 74 so I understand your feeling unsure.